The measurement of patient attitudes regarding prenatal and preconception genetic carrier screening and translational behavioral medicine: an integrative review

Measurement of recessive carrier screening attitudes related to conception and pregnancy is necessary to determine current acceptance, and whether behavioral intervention strategies are needed in clinical practice. To evaluate quantitative survey instruments to measure patient attitudes regarding ge...

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Published inTranslational behavioral medicine Vol. 7; no. 2; pp. 364 - 370
Main Authors Shiroff, Jennifer J., Gregoski, Mathew J.
Format Journal Article
LanguageEnglish
Published New York Oxford University Press 01.06.2017
Springer US
Subjects
Online AccessGet full text
ISSN1869-6716
1613-9860
DOI10.1007/s13142-015-0346-8

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Abstract Measurement of recessive carrier screening attitudes related to conception and pregnancy is necessary to determine current acceptance, and whether behavioral intervention strategies are needed in clinical practice. To evaluate quantitative survey instruments to measure patient attitudes regarding genetic carrier testing prior to conception and pregnancy databases examining patient attitudes regarding genetic screening prior to conception and pregnancy from 2003–2013 were searched yielding 344 articles; eight studies with eight instruments met criteria for inclusion. Data abstraction on theoretical framework, subjects, instrument description, scoring, method of measurement, reliability, validity, feasibility, level of evidence, and outcomes was completed. Reliability information was provided in five studies with an internal consistency of Cronbach's α >0.70. Information pertaining to validity was presented in three studies and included construct validity via factor analysis. Despite limited psychometric information, these questionnaires are self-administered and can be briefly completed, making them a feasible method of evaluation.
AbstractList Measurement of recessive carrier screening attitudes related to conception and pregnancy is necessary to determine current acceptance, and whether behavioral intervention strategies are needed in clinical practice. To evaluate quantitative survey instruments to measure patient attitudes regarding genetic carrier testing prior to conception and pregnancy databases examining patient attitudes regarding genetic screening prior to conception and pregnancy from 2003–2013 were searched yielding 344 articles; eight studies with eight instruments met criteria for inclusion. Data abstraction on theoretical framework, subjects, instrument description, scoring, method of measurement, reliability, validity, feasibility, level of evidence, and outcomes was completed. Reliability information was provided in five studies with an internal consistency of Cronbach’s α >0.70. Information pertaining to validity was presented in three studies and included construct validity via factor analysis. Despite limited psychometric information, these questionnaires are self-administered and can be briefly completed, making them a feasible method of evaluation.
Author Gregoski, Mathew J.
Shiroff, Jennifer J.
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Issue 2
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Integrative review
Conception
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Genetic testing
Attitude
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SubjectTerms Attitudes
Behavior
Cross Cultural Psychology
Cystic fibrosis
Disease
Family medical history
Family Medicine
General Practice
Genetic Carrier Screening
Genetic disorders
Health Knowledge, Attitudes, Practice
Health Promotion and Disease Prevention
Health Psychology
Humans
Medical screening
Medicine
Medicine & Public Health
Mutation
Nursing
Original Research
Patients
Pregnancy
Prenatal Diagnosis
Public Health
Surveys and Questionnaires
Validity
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Title The measurement of patient attitudes regarding prenatal and preconception genetic carrier screening and translational behavioral medicine: an integrative review
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