The measurement of patient attitudes regarding prenatal and preconception genetic carrier screening and translational behavioral medicine: an integrative review
Measurement of recessive carrier screening attitudes related to conception and pregnancy is necessary to determine current acceptance, and whether behavioral intervention strategies are needed in clinical practice. To evaluate quantitative survey instruments to measure patient attitudes regarding ge...
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Published in | Translational behavioral medicine Vol. 7; no. 2; pp. 364 - 370 |
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Main Authors | , |
Format | Journal Article |
Language | English |
Published |
New York
Oxford University Press
01.06.2017
Springer US |
Subjects | |
Online Access | Get full text |
ISSN | 1869-6716 1613-9860 |
DOI | 10.1007/s13142-015-0346-8 |
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Abstract | Measurement of recessive carrier screening attitudes related to conception and pregnancy is necessary to determine current acceptance, and whether behavioral intervention strategies are needed in clinical practice. To evaluate quantitative survey instruments to measure patient attitudes regarding genetic carrier testing prior to conception and pregnancy databases examining patient attitudes regarding genetic screening prior to conception and pregnancy from 2003–2013 were searched yielding 344 articles; eight studies with eight instruments met criteria for inclusion. Data abstraction on theoretical framework, subjects, instrument description, scoring, method of measurement, reliability, validity, feasibility, level of evidence, and outcomes was completed. Reliability information was provided in five studies with an internal consistency of Cronbach's α >0.70. Information pertaining to validity was presented in three studies and included construct validity via factor analysis. Despite limited psychometric information, these questionnaires are self-administered and can be briefly completed, making them a feasible method of evaluation. |
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AbstractList | Measurement of recessive carrier screening attitudes related to conception and pregnancy is necessary to determine current acceptance, and whether behavioral intervention strategies are needed in clinical practice. To evaluate quantitative survey instruments to measure patient attitudes regarding genetic carrier testing prior to conception and pregnancy databases examining patient attitudes regarding genetic screening prior to conception and pregnancy from 2003–2013 were searched yielding 344 articles; eight studies with eight instruments met criteria for inclusion. Data abstraction on theoretical framework, subjects, instrument description, scoring, method of measurement, reliability, validity, feasibility, level of evidence, and outcomes was completed. Reliability information was provided in five studies with an internal consistency of Cronbach’s α >0.70. Information pertaining to validity was presented in three studies and included construct validity via factor analysis. Despite limited psychometric information, these questionnaires are self-administered and can be briefly completed, making them a feasible method of evaluation. |
Author | Gregoski, Mathew J. Shiroff, Jennifer J. |
Author_xml | – sequence: 1 givenname: Jennifer J. surname: Shiroff fullname: Shiroff, Jennifer J. email: jennifer.shiroff@jefferson.edu organization: 1Jefferson College of Nursing, Thomas Jefferson University, 130 South 9th Street, Edison Building, 754, 19107, Philadelphia, PA, USA – sequence: 2 givenname: Mathew J. surname: Gregoski fullname: Gregoski, Mathew J. email: gregoski@musc.edu organization: 2College of Nursing, Medical University of South Carolina, 99 Jonathan Lucas Street, MSC 160, 29425, Charleston, SC, USA |
BackLink | https://www.ncbi.nlm.nih.gov/pubmed/27573293$$D View this record in MEDLINE/PubMed |
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Cites_doi | 10.1016/0749-5978(91)90020-T 10.1111/j.1365-2648.2005.03621.x 10.2105/AJPH.2013.301416 10.1089/gtmb.2010.0121 10.1159/000314643 10.1038/ng0393-195 10.1093/humrep/der042 10.1089/gte.2004.8.80 10.1126/scitranslmed.3001756 10.1097/GRF.0b013e318160f241 10.1007/PL00014401 10.1097/00125817-200103000-00010 10.1177/1090198110389711 10.1080/13557858.2011.564607 10.1016/j.rbmo.2010.05.012 10.1093/epirev/mxr008 10.1080/08870440701544437 10.1007/s10897-005-9004-5 10.1016/j.ogc.2008.05.002 10.1159/000276544 10.1001/archinte.159.14.1529 10.1007/s12687-011-0071-z 10.1038/ejhg.2009.1 10.1186/1471-2458-9-338 |
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Copyright | Society of Behavioral Medicine Copyright © 2015, Society of Behavioral Medicine 2015 Society of Behavioral Medicine 2015 Copyright © 2015, Society of Behavioral Medicine. |
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SubjectTerms | Attitudes Behavior Cross Cultural Psychology Cystic fibrosis Disease Family medical history Family Medicine General Practice Genetic Carrier Screening Genetic disorders Health Knowledge, Attitudes, Practice Health Promotion and Disease Prevention Health Psychology Humans Medical screening Medicine Medicine & Public Health Mutation Nursing Original Research Patients Pregnancy Prenatal Diagnosis Public Health Surveys and Questionnaires Validity |
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Title | The measurement of patient attitudes regarding prenatal and preconception genetic carrier screening and translational behavioral medicine: an integrative review |
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