‘Much more convenient, just as effective’: Experiences of starting continuous glucose monitoring remotely following Type 1 diabetes diagnosis

• Published in: Diabetic medicine Vol. 39; no. 11; pp. e14923 - n/a
• Main Authors: Tanenbaum, Molly L., Zaharieva, Dessi P., Addala, Ananta, Prahalad, Priya, Hooper, Julie A., Leverenz, Brianna, Cortes, Ana L., Arrizon‐Ruiz, Nora, Pang, Erica, Bishop, Franziska, Maahs, David M.
• Format: Journal Article
• Language: English
• Published: England Wiley Subscription Services, Inc 01.11.2022
• Subjects: Adolescent; Adult; Blood Glucose; Blood Glucose Self-Monitoring; Child; Child, Preschool; children and adolescents; continuous glucose monitoring; COVID-19 - diagnosis; COVID-19 - epidemiology; COVID-19 Testing; Diabetes; Diabetes mellitus (insulin dependent); Diabetes Mellitus, Type 1 - diagnosis; Diagnosis; Female; Glucose monitoring; healthcare delivery; Hispanic Americans; Humans; Male; Medical diagnosis; Middle Aged; Pandemics; Parents & parenting; psychological aspects; Quality of Life; SARS-CoV-2; Severe acute respiratory syndrome coronavirus 2; Teenagers; telehealth; Telemedicine; type 1 diabetes; children and adolescents; type 1 diabetes; continuous glucose monitoring; healthcare delivery; telehealth; psychological aspects
• ISSN: 0742-3071; 1464-5491; 1464-5491
• DOI: 10.1111/dme.14923

Aim Initiating continuous glucose monitoring (CGM) shortly after Type 1 diabetes diagnosis has glycaemic and quality of life benefits for youth with Type 1 diabetes and their families. The SARS‐CoV‐2 pandemic led to a rapid shift to virtual delivery of CGM initiation visits. We aimed to understand parents' experiences receiving virtual care to initiate CGM within 30 days of diagnosis. Methods We held focus groups and interviews using a semi‐structured interview guide with parents of youth who initiated CGM over telehealth within 30 days of diagnosis during the SARS‐CoV‐2 pandemic. Questions aimed to explore experiences of starting CGM virtually. Groups and interviews were audio‐recorded, transcribed and analysed using thematic analysis. Results Participants were 16 English‐speaking parents (age 43 ± 6 years; 63% female) of 15 youth (age 9 ± 4 years; 47% female; 47% non‐Hispanic White, 20% Hispanic, 13% Asian, 7% Black, 13% other). They described multiple benefits of the virtual visit including convenient access to high‐quality care; integrating Type 1 diabetes care into daily life; and being in the comfort of home. A minority experienced challenges with virtual care delivery; most preferred the virtual format. Participants expressed that clinics should offer a choice of virtual or in‐person to families initiating CGM in the future. Conclusion Most parents appreciated receiving CGM initiation education via telehealth and felt it should be an option offered to all families. Further efforts can continue to enhance CGM initiation teaching virtually to address identified barriers.