Barriers and facilitators to implementation of the interoperable Survivorship Passport (SurPass) v2.0 in 6 European countries: a PanCareSurPass online survey study

• Published in: Journal of cancer survivorship Vol. 18; no. 3; pp. 928 - 940
• Main Authors: van den Oever, Selina R., de Beijer, Ismay A. E., Kremer, Leontien C. M., Alfes, Marie, Balaguer, Julia, Bardi, Edit, Nieto, Adela Cañete, Cangioli, Giorgio, Charalambous, Eliana, Chronaki, Catherine, Costa, Tiago, Degelsegger, Alexander, Düster, Vanessa, Filbert, Anna-Liesa, Grabow, Desiree, Gredinger, Gerald, Gsell, Hannah, Haupt, Riccardo, van Helvoirt, Maria, Ladenstein, Ruth, Langer, Thorsten, Laschkolnig, Anja, Muraca, Monica, Rascon, Jelena, Schreier, Günter, Tomasikova, Zuzana, Tormo, Maria Teresa, Trinkunas, Justas, Trollip, Jessica, Trunner, Kathrin, Uyttebroeck, Anne, van der Pal, Helena J. H., Pluijm, Saskia M. F.
• Format: Journal Article
• Language: English
• Published: New York Springer US 01.06.2024; Springer Nature B.V
• Subjects: Cancer; Cancer Survivors - psychology; Children; Consortia; Electronic medical records; Ethics; Europe; Female; Health Informatics; Health Promotion and Disease Prevention; Humans; Male; Medicine; Medicine & Public Health; Neoplasms - therapy; Oncology; Pediatrics; Personal health; Primary Care Medicine; Public Health; Quality of Life; Quality of Life Research; Social responsibility; Stakeholders; Surveillance; Surveys; Surveys and Questionnaires; Survival; Survivor; Survivorship; Europe; Cancer survivors; Survivorship Passport; Long-term follow-up care; Aftercare; Paediatric oncology; SurPass; Care plan; Survivorship
• ISSN: 1932-2259; 1932-2267; 1932-2267
• DOI: 10.1007/s11764-023-01335-y

Purpose Long-term follow-up (LTFU) care for childhood cancer survivors (CCSs) is essential to improve and maintain their quality of life. The Survivorship Passport (SurPass) is a digital tool which can aid in the delivery of adequate LTFU care. During the European PanCareSurPass (PCSP) project, the SurPass v2.0 will be implemented and evaluated at six LTFU care clinics in Austria, Belgium, Germany, Italy, Lithuania and Spain. We aimed to identify barriers and facilitators to the implementation of the SurPass v2.0 with regard to the care process as well as ethical, legal, social and economical aspects. Methods An online, semi-structured survey was distributed to 75 stakeholders (LTFU care providers, LTFU care program managers and CCSs) affiliated with one of the six centres. Barriers and facilitators identified in four centres or more were defined as main contextual factors influencing implementation of SurPass v2.0. Results Fifty-four barriers and 50 facilitators were identified. Among the main barriers were a lack of time and (financial) resources, gaps in knowledge concerning ethical and legal issues and a potential increase in health-related anxiety in CCSs upon receiving a SurPass. Main facilitators included institutions’ access to electronic medical records, as well as previous experience with SurPass or similar tools. Conclusions We provided an overview of contextual factors that may influence SurPass implementation. Solutions should be found to overcome barriers and ensure effective implementation of SurPass v2.0 into routine clinical care. Implications for Cancer Survivors These findings will be used to inform on an implementation strategy tailored for the six centres.