The design of patient decision support interventions: addressing the theory-practice gap

• Published in: Journal of evaluation in clinical practice Vol. 17; no. 4; pp. 565 - 574
• Main Authors: Elwyn, Glyn, Stiel, Mareike, Durand, Marie-Anne, Boivin, Jacky
• Format: Journal Article
• Language: English
• Published: Oxford, UK Blackwell Publishing Ltd 01.08.2011
• Subjects: decision aids; Decision Support Techniques; decision-making theory; DESIs; Humans; Models, Theoretical; operationalization; Patient Participation
• ISSN: 1356-1294; 1365-2753; 1365-2753
• DOI: 10.1111/j.1365-2753.2010.01517.x

Background  Although an increasing number of decision support interventions for patients (including decision aids) are produced, few make explicit use of theory. We argue the importance of using theory to guide design. The aim of this work was to address this theory–practice gap and to examine how a range of selected decision‐making theories could inform the design and evaluation of decision support interventions. Methods  We reviewed the decision‐making literature and selected relevant theories. We assessed their key principles, theoretical pathways and predictions in order to determine how they could inform the design of two core components of decision support interventions, namely, information and deliberation components and to specify theory‐based outcome measures. Results  Eight theories were selected: (1) the expected utility theory; (2) the conflict model of decision making; (3) prospect theory; (4) fuzzy‐trace theory; (5) the differentiation and consolidation theory; (6) the ecological rationality theory; (7) the rational–emotional model of decision avoidance; and finally, (8) the Attend, React, Explain, Adapt model of affective forecasting. Some theories have strong relevance to the information design (e.g. prospect theory); some are more relevant to deliberation processes (conflict theory, differentiation theory and ecological validity). None of the theories in isolation was sufficient to inform the design of all the necessary components of decision support interventions. It was also clear that most work in theory‐building has focused on explaining or describing how humans think rather than on how tools could be designed to help humans make good decisions. It is not surprising therefore that a large theory–practice gap exists as we consider decision support for patients. There was no relevant theory that integrated all the necessary contributions to the task of making good decisions in collaborative interactions. Discussion  Initiatives such as the International Patient Decision Aids Standards Collaboration influence standards for the design of decision support interventions. However, this analysis points to the need to undertake more work in providing theoretical foundations for these interventions.