Haemangioma Family Burden: Creation of a Specific Questionnaire

• Published in: Acta dermato-venereologica Vol. 95; no. 1; pp. 78 - 82
• Main Authors: Boccara, O, Méni, C, Léauté-Labreze, C, Bodemer, C, Voisard, J, Dufresne, H, Brauchoux, S, Taieb, C
• Format: Journal Article
• Language: English
• Published: Sweden 2015
• Subjects: Absenteeism; Child, Preschool; Cost of Illness; Emotions; Employment; Factor Analysis, Statistical; Family Relations; Female; France; Hemangioma - diagnosis; Hemangioma - psychology; Humans; Infant; Male; Parents - psychology; Predictive Value of Tests; Psychometrics; Reproducibility of Results; Surveys and Questionnaires; France
• ISSN: 0001-5555; 1651-2057; 1651-2057
• DOI: 10.2340/00015555-1847

To develop and validate a specific questionnaire to assess burden on families of children with infantile haemangioma (IH): the Haemangioma Family Burden questionnaire (HFB). Items were generated from a literature review and a verbatim report from parents. Subsequently, a study was implemented at the Necker Hospital and the Pellegrin Children's Hospital for psychometric analysis. The HFB was refined via item reduction according to inter-question correlations, consensus among experts and exploratory factor analysis. A 20-item questionnaire, grouped into 5 dimensions, was obtained. Construct validity was demonstrated and HFB showed good internal coherence (Cronbach's α: 0.93). The HFB was significantly correlated with the mental dimension of the Short-Form-12 (r = -0.75), and the Psychological General Well-Being Index (r = -0.61). HFB scores differed significantly according to the size and localization of the IH. A validated tool for assessing the burden on families of children with IH is now available.