Characteristics of effective parent-mediated interventions for parents of children with neurodevelopmental disorders in rural areas: a systematic review protocol

• Published in: BMJ open Vol. 14; no. 8; p. e083464
• Main Authors: Cullenward, Julia, Curtin, Michael, Dos Santos, Vagner
• Format: Journal Article
• Language: English
• Published: England British Medical Journal Publishing Group 13.08.2024; BMJ Publishing Group LTD; BMJ Publishing Group
• Subjects: Attention deficit hyperactivity disorder; Autism; Cerebral palsy; Child; Children & youth; Community child health; Developmental neurology & neurodisability; Disability; Early intervention; Families & family life; Geographical mapping; Health care access; Health Equity; Home environment; Humans; Intervention; Neurodevelopmental disorders; Neurodevelopmental Disorders - therapy; Paediatrics; Parent-Child Relations; Parents & parenting; Parents - psychology; Pediatrics; Protocol; Regions; Research Design; Rural areas; Rural Population; Socioeconomic factors; Socioeconomic status; Systematic review; Systematic Reviews as Topic; Telemedicine; Training; Geographical mapping; Developmental neurology & neurodisability; Telemedicine; Health Equity; Community child health
• ISSN: 2044-6055; 2044-6055
• DOI: 10.1136/bmjopen-2023-083464

IntroductionParent-mediated interventions are therapeutic approaches that use parent training to enable parents to provide primary support and intervention to their child through the development of necessary skills, knowledge, and resources.Parent-mediated interventions can be broadly divided into two stages: (1) Clinicians educating, training and coaching parents in the implementation of an intervention and relevant information regarding their child’s condition and (2) Parent(s) mediating and implementing the intervention based on the coaching and education received. These interventions can act as the primary intervention for children or supplement clinical interventions. This review will include both stages of the implementation process as well as both primary and supplementary interventions. Outcomes of parent-mediated interventions include long-term symptom reduction, improved prognosis for a wide range of behavioural and brain functions and enhanced parent–child dyadic social communication.Methods and analysisThis systematic review aims to synthesise existing evidence and identify the characteristics of effective parent-mediated intervention for parents of children with neurodevelopmental disorders residing in rural areas. Systematic searches of CINAHL, PsycINFO, ProQuest allied health and nursing database, Ebscohost Psych and Behavioural database and SocINDEX were conducted twice with the latest completed on 5 March 2024 using preidentified search terms. Citations will be imported into EndNote V.20.6 (Clarivate Analytics, Pennsylvania, USA) to organise and de-duplicate and then Covidence to complete screening and extraction. The articles will be screened and reviewed following the Joanna Briggs Institute (JBI) guidelines for systematic reviews of Mixed methods. The JBI appraisal tools for systematic reviews will be used to assess the trustworthiness, relevance and results of qualitative, quantitative and mixed-methods studies. The scope of the literature analysed will include articles published between 2013 and 2024 in English. Literature was limited to the last 10 years to ensure the relevance of results as the intention is to report on current evidence. The start date of the study was March 2023 and the planned completion date is October 2024.Ethics and disseminationThis study will neither involve human nor animal subjects and does not require ethics approval. Results will be disseminated to relevant groups in peer-reviewed journal(s) and at relevant children and parent health conferences or rural conferences. The key outcomes will also be shared on social media to support access for non-research audiences.