Surfacing Collective Harms in Privacy Sensitive Data

Privacy protections for human subject data are often focused on reducing individual harms that result from improper disclosure of personally identifiable information. However, in a networked environment where information infrastructures enable rapid sharing and linking of different datasets there ex...

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Bibliographic Details
Published in2021 ACM/IEEE Joint Conference on Digital Libraries (JCDL) pp. 202 - 211
Main Author Weber, Nicholas
Format Conference Proceeding
LanguageEnglish
Published IEEE 01.09.2021
Subjects
Collective Harms
Contextual Integrity
Data Curation
Data privacy
Green products
Privacy
Publishing
Research Infrastructures
Social sciences
Soft sensors
Training
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DOI10.1109/JCDL52503.2021.00032

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Summary:Privacy protections for human subject data are often focused on reducing individual harms that result from improper disclosure of personally identifiable information. However, in a networked environment where information infrastructures enable rapid sharing and linking of different datasets there exist numerous harms which abstract to group or collective levels. In this paper we discuss how privacy protections aimed at individual harms, as opposed to collective or group harms, results in an incompatible notion of privacy protections for social science research that synthesizes multiple data sources. Using the framework of Contextual Integrity we present empirical scenarios drawn from 17 in-depth interviews with researchers conducting synthetic research using one or more privacy sensitive data sources. We use these scenarios to identify ways that digital infrastructure providers can help social scientists manage collective harms over time through specific, targeted privacy engineering of supporting research infrastructures and data curation.
DOI:10.1109/JCDL52503.2021.00032