가정용 인공호흡기를 적용한 희귀·난치성질환자를 돌보는 가족간호자의 부담감과 삶의 질 영향요인

• Published in: Sŏngin Kanho Hakhoe chi Vol. 26; no. 2; pp. 191 - 202
• Main Authors: 황문숙(Hwang, Moon Sook), 이미경(Lee, Mi Kyoung), 송종례(Song, Jeong Rye)
• Format: Journal Article
• Language: Korean
• Published: 한국성인간호학회 2014
• Subjects: Ventilator; Burden; Rare disease; Caregiver; Quality of life
• ISSN: 1225-4886; 2288-338X

Purpose: This study was aimed to survey the actual caregiving conditions of family caregivers who are caring patients with rare and incurable diseases using home ventilators at home, and to clarify any factors affecting their burdens and quality of life. Methods: A questionnaire survey was performed by the 159 subjects, and the questionnaires contained the actual conditions of caregiving activities, and caregiver's burdens and quality of life. The collected data was analyzed by ANOVA, Pearson's correlation, and stepwise linear regressions. Results: The mean of burden scores was 3.55 out of 5, and influencing variables included the relationships with patient (spouse), respite (moderate), health status, and diagnosis (non ALS), with the explanatory power of 30.0%. The mean of the quality of life was 2.58 point, and the influencing variables included burdens, health status, and respite (enough), with the explanatory power of 39.0%. Conclusion: In order to improve the quality of life among family caregivers caring for patients with using a home ventilator, it is required to develop strategies for reducing caregiving burdens as well as to introduce family respite welfare systems to family caregivers.