Grief Care for Bereaved Families of Patients with Dementia as Perceived by Visiting Nurses
This study aims to determine visiting nurses’ perception of grief care they provide to bereaved families of patients with dementia. A questionnaire survey was administered to 57 visiting nurses. It included questions on the present situation of grief care and their perception on the subject. The res...
Saved in:
| Published in | journal of society for healthcare and community involvement Vol. 1; no. 2; pp. 41 - 49 |
|---|---|
| Main Author | |
| Format | Journal Article |
| Language | Japanese |
| Published |
society for healthcare and community involvement
2024
日本地域共生ヘルスケア学会 |
| Subjects | |
| Online Access | Get full text |
| ISSN | 2759-4084 |
| DOI | 10.60433/healthc.1.2_41 |
Cover
| Abstract | This study aims to determine visiting nurses’ perception of grief care they provide to bereaved families of patients with dementia. A questionnaire survey was administered to 57 visiting nurses. It included questions on the present situation of grief care and their perception on the subject. The results showed that visiting nurses provided support to the bereaved families of patients with dementia through home visits and telephone consultations for 49 days after patient death. A total of 51 consultations were received from the bereaved families of patients with dementia: 15 were related to daily life concerns, 14 to care and surrogate decision-making, 8 to symptoms of dementia, 7 to feelings of loss, and 7 to physical conditions. The descriptions of grief care as perceived by the visiting nurses were coded and divided into 23 categories from which 7 subcategories were further extracted. Visiting nurses perceive grief care as: [helping bereaved family to express their negative and positive feelings and thoughts], [offering empathy and support for feelings of grief], [affirming that proxy decision-making respects the personality of the patient with dementia], [addressing caregiver fatigue due to the progress of dementia], [allowing bereaved family members to share their feelings with each other], [ensuring proper utilization of social resources for future life], and [providing educational support to enhance knowledge on characteristics of mentia and the grieving process]. Keywords: grief care , visiting nurse , dementia, bereaved family , content analysis |
|---|---|
| AbstractList | This study aims to determine visiting nurses’ perception of grief care they provide to bereaved families of
patients with dementia.
A questionnaire survey was administered to 57 visiting nurses. It included questions on the present situation of
grief care and their perception on the subject.
The results showed that visiting nurses provided support to the bereaved families of patients with dementia
through home visits and telephone consultations for 49 days after patient death. A total of 51 consultations were received from the bereaved families of patients with dementia: 15 were related to daily life concerns, 14 to care and surrogate decision-making, 8 to symptoms of dementia, 7 to feelings of loss, and 7 to physical conditions.
The descriptions of grief care as perceived by the visiting nurses were coded and divided into 23 categories from which 7 subcategories were further extracted.
Visiting nurses perceive grief care as: [helping bereaved family to express their negative and positive feelings
and thoughts], [offering empathy and support for feelings of grief], [affirming that proxy decision-making respects
the personality of the patient with dementia], [addressing caregiver fatigue due to the progress of dementia],
[allowing bereaved family members to share their feelings with each other], [ensuring proper utilization of social
resources for future life], and [providing educational support to enhance knowledge on characteristics of mentia
and the grieving process].
Keywords: grief care , visiting nurse , dementia, bereaved family , content analysis
本研究の目的は，訪問看護師の認知症患者遺族に対する支援の実態を踏まえ，訪問看護師がグリーフケアをどのように認識しているかを，明らかにすることである。
訪問看護師57名を対象に質問紙調査を実施した。質問紙はグリーフケアの実態とグリーフケアに関する認識を問うた。その結果，訪問看護師は認知症患者遺族に対し，死後四十九日までに，自宅訪問や電話相談などの支援を実施していた。認知症遺族から受けた相談内容は，生活に関わる相談15件，これまで行なってきた介護や代理意思決定に関わる相談14件，認知症の症状に関わる相談8件，喪失に関わる相談7件，身体に関わる相談7件の合計51件であった。 訪問看護師が認識するグリーフケアに関する記述内容を，コード化し，カテゴリ化した結果，23サブカテゴリから7カテゴリが抽出された。それらは，【否定的・肯定的な感情や思いの表出支援】【思いや悲しみへの共感と寄添い】【認知症患者の人格を尊重した代理意思決定の肯定】【認知症の進行に伴う介護疲労への労い】【遺族間で思いを共有する機会の提供】【今後の生活に向けた社会的資源の活用】【認知症の特徴と悲嘆プロセスに関する教育的支援】と命名された。
キーワード：グリーフケア，訪問看護師，認知症，遺族，内容分析 This study aims to determine visiting nurses’ perception of grief care they provide to bereaved families of patients with dementia. A questionnaire survey was administered to 57 visiting nurses. It included questions on the present situation of grief care and their perception on the subject. The results showed that visiting nurses provided support to the bereaved families of patients with dementia through home visits and telephone consultations for 49 days after patient death. A total of 51 consultations were received from the bereaved families of patients with dementia: 15 were related to daily life concerns, 14 to care and surrogate decision-making, 8 to symptoms of dementia, 7 to feelings of loss, and 7 to physical conditions. The descriptions of grief care as perceived by the visiting nurses were coded and divided into 23 categories from which 7 subcategories were further extracted. Visiting nurses perceive grief care as: [helping bereaved family to express their negative and positive feelings and thoughts], [offering empathy and support for feelings of grief], [affirming that proxy decision-making respects the personality of the patient with dementia], [addressing caregiver fatigue due to the progress of dementia], [allowing bereaved family members to share their feelings with each other], [ensuring proper utilization of social resources for future life], and [providing educational support to enhance knowledge on characteristics of mentia and the grieving process]. Keywords: grief care , visiting nurse , dementia, bereaved family , content analysis |
| Author | Kawai, Mayumi |
| Author_FL | 河合 まゆみ |
| Author_FL_xml | – sequence: 1 fullname: 河合 まゆみ |
| Author_xml | – sequence: 1 fullname: Kawai, Mayumi organization: Society for healthcare and community involvement |
| BackLink | https://cir.nii.ac.jp/crid/1390583238591312384$$DView record in CiNii |
| BookMark | eNo9kD1PwzAQhi0EEqV0ZvXAmuLPJl6QoNCCVEGHioHFujjnxlWaIjuA-u9J1Yrh7tGr99ENd0XO212LhNxwNp4wJeVdjdB0tRvzsbCKn5GByLXJFCvUJRmlFEqmtZFKCjYgn_MY0NMpRKR-F-kjRoQfrOgMtqEJmOjO0yV0Adsu0d_Q1fQJt30IQCHRJUaH4eCXe_oRUuhCu6Zv3zFhuiYXHpqEoxOHZDV7Xk1fssX7_HX6sMg2hVIZFlhVRkCOTAk38RMPUlS51LmqHHcSCq9Lw5gUQrmc-V4uc-Cca2NKBVwOye3xbBuCdeGwuTRMF1LIQhsueU_Va_dHbZM6WKP9imELcW8hdsE1aE9Ps9yKfhT_L1wN0WIr_wDEmmsV |
| ContentType | Journal Article |
| Copyright | 2024 society for healthcare and community involvement |
| Copyright_xml | – notice: 2024 society for healthcare and community involvement |
| DBID | RYH |
| DOI | 10.60433/healthc.1.2_41 |
| DatabaseName | CiNii Complete |
| DatabaseTitleList | |
| DeliveryMethod | fulltext_linktorsrc |
| DocumentTitleAlternate | 訪問看護師が認識する認知症患者遺族へのグリーフケア |
| DocumentTitle_FL | 訪問看護師が認識する認知症患者遺族へのグリーフケア |
| EISSN | 2759-4084 |
| EndPage | 49 |
| ExternalDocumentID | article_healthc_1_2_1_41_article_char_en |
| GroupedDBID | M~E RYH |
| ID | FETCH-LOGICAL-j844-e8edd92a7e042c6f6fa32d73574dc1c3a8f5b9003224c70fdd9b7a111599b4a13 |
| IngestDate | Thu Jun 26 23:53:36 EDT 2025 Wed Sep 03 06:30:55 EDT 2025 |
| IsDoiOpenAccess | true |
| IsOpenAccess | true |
| IsPeerReviewed | false |
| IsScholarly | false |
| Issue | 2 |
| Language | Japanese |
| LinkModel | OpenURL |
| MergedId | FETCHMERGED-LOGICAL-j844-e8edd92a7e042c6f6fa32d73574dc1c3a8f5b9003224c70fdd9b7a111599b4a13 |
| OpenAccessLink | https://www.jstage.jst.go.jp/article/healthc/1/2/1_41/_article/-char/en |
| PageCount | 9 |
| ParticipantIDs | nii_cinii_1390583238591312384 jstage_primary_article_healthc_1_2_1_41_article_char_en |
| PublicationCentury | 2000 |
| PublicationDate | 2024 |
| PublicationDateYYYYMMDD | 2024-01-01 |
| PublicationDate_xml | – year: 2024 text: 2024 |
| PublicationDecade | 2020 |
| PublicationTitle | journal of society for healthcare and community involvement |
| PublicationTitleAlternate | 日本地域共生ヘルスケア学会誌 |
| PublicationTitle_FL | 日本地域共生ヘルスケア学会誌 |
| PublicationYear | 2024 |
| Publisher | society for healthcare and community involvement 日本地域共生ヘルスケア学会 |
| Publisher_xml | – name: society for healthcare and community involvement – name: 日本地域共生ヘルスケア学会 |
| References | ［21］坂口幸弘，恒藤暁，柏木哲夫，池田昌之，田村恵子『遺族の感情表出が精神的健康に及ぼす影響―感情表出は本当に有効な対処方法なのか？―』， 死の臨床， 2002； 25（1）： p.58-6. ［5］Gerber, I., Rusalem, R., Hannon, N.et al. Anticipatory grief and aged widows and widowers. Journal of Gerontology. 1975； 30（2）: p.225–229. ［11］渡邊朱美，富田早苗『訪問看護が行なうグリーフケアの困難感と教育的課題』，川﨑医療福祉学会誌，2021；30（2）: p.475-482 ［6］［9］小野若菜子『家族介護者に対して訪問看護師が行うグリーフケアとアウトカムの構成概念の検討』，日本看護科学会誌.，2011； 31（1）： p.25-35 ［3］公益財団法人長寿科学振興財団，『認知症の予防とケア』 第5章 認知症のケア 10 家族の視点から，2019-3 https://www.tyojyu.or.jp/kankoubutsu/gyoseki/ ninchisho-yobo-care/index.html （閲覧日 2023.2.10） ［16］廣瀬寛子，『悲嘆とグリーフケア』，医学書院，2018：243 p. ［17］［18］［19］ Hays, J.S., Larson，K.H.,『看護実践と言葉 患者との相互作用 Interacting with Patients 訳 』， 日本赤十字社医療センター看護研究会，メヂカルフレンド社，1998：p.16-17. ［7］坂口幸弘『超高齢社会における死別とグリーフケア』，老年看護学， 2021；（ 2）： p.16-20 ［4］厚生労働省委託事業 がん患者の療養生活の最終段階における実態把握事業 国立がん研究センター がん対策研究所，『患者さまが受けられた医療に関するご遺族の方への調査報告書 2018-2019 年度調査』，2022-3 https://www.ncc.go.jp/jp/icc/qual-assur-programs/ project/040/2019-2020/20220325.pdf （閲覧日 2023.2.10） ［13］小野若菜子『訪問看護ステーションにおける家族介護者へのグリーフケアの実施に関する全国調査』，日本在宅ケア学会誌.，2011；14（2）： p.58-65 ［2］政策統括世帯統計室. 『 2022（令和4年）国民生活基礎調査』， 厚生労働省https://www.mhlw.go.jp/toukei/list/20-21kekka.html（閲覧日2023.2.10） ［8］小野若菜子『訪問看護ステーションにおける家族介護者へのグリーフケアの実施に関する全国調査』， 日本在宅ケア学会誌，2011；14（2）：p.58-65. ［15］平賀睦『遺族の心の整理を促すための訪問看護師による効果的な遺族訪問方法の検討－実施時期に焦点をあてて－』， Japanese Red Cross Hiroshima College of Nursing，2017；17： p.58-65. ［14］ 中里和弘『訪問間事業所における遺族支援の実態調査』，地方独立法人 東京都健康長寿医療センター研究所，2016：p.1-46 ［10］［12］［20］工藤朋子，古瀬みどり『訪問看護ステーションにおける遺族ケアに関する全国調査』，Palliative Care Research.，2016； 11（2）： p.126-136 ［1］関口健二『認知症の生命予後と終末期，どう判断する？』，医学界新聞，医学書，2017；4-3 https://www.igakushoin.co.jp/paper/archie/y2017/ PA03218_04（閲覧日2023.2.10） |
| References_xml | – reference: ［2］政策統括世帯統計室. 『 2022（令和4年）国民生活基礎調査』， 厚生労働省https://www.mhlw.go.jp/toukei/list/20-21kekka.html（閲覧日2023.2.10） – reference: ［8］小野若菜子『訪問看護ステーションにおける家族介護者へのグリーフケアの実施に関する全国調査』， 日本在宅ケア学会誌，2011；14（2）：p.58-65. – reference: ［11］渡邊朱美，富田早苗『訪問看護が行なうグリーフケアの困難感と教育的課題』，川﨑医療福祉学会誌，2021；30（2）: p.475-482 – reference: ［4］厚生労働省委託事業 がん患者の療養生活の最終段階における実態把握事業 国立がん研究センター がん対策研究所，『患者さまが受けられた医療に関するご遺族の方への調査報告書 2018-2019 年度調査』，2022-3 https://www.ncc.go.jp/jp/icc/qual-assur-programs/ project/040/2019-2020/20220325.pdf （閲覧日 2023.2.10） – reference: ［21］坂口幸弘，恒藤暁，柏木哲夫，池田昌之，田村恵子『遺族の感情表出が精神的健康に及ぼす影響―感情表出は本当に有効な対処方法なのか？―』， 死の臨床， 2002； 25（1）： p.58-6. – reference: ［13］小野若菜子『訪問看護ステーションにおける家族介護者へのグリーフケアの実施に関する全国調査』，日本在宅ケア学会誌.，2011；14（2）： p.58-65 – reference: ［14］ 中里和弘『訪問間事業所における遺族支援の実態調査』，地方独立法人 東京都健康長寿医療センター研究所，2016：p.1-46 – reference: ［17］［18］［19］ Hays, J.S., Larson，K.H.,『看護実践と言葉 患者との相互作用 Interacting with Patients 訳 』， 日本赤十字社医療センター看護研究会，メヂカルフレンド社，1998：p.16-17. – reference: ［10］［12］［20］工藤朋子，古瀬みどり『訪問看護ステーションにおける遺族ケアに関する全国調査』，Palliative Care Research.，2016； 11（2）： p.126-136 – reference: ［5］Gerber, I., Rusalem, R., Hannon, N.et al. Anticipatory grief and aged widows and widowers. Journal of Gerontology. 1975； 30（2）: p.225–229. – reference: ［3］公益財団法人長寿科学振興財団，『認知症の予防とケア』 第5章 認知症のケア 10 家族の視点から，2019-3 https://www.tyojyu.or.jp/kankoubutsu/gyoseki/ ninchisho-yobo-care/index.html （閲覧日 2023.2.10） – reference: ［16］廣瀬寛子，『悲嘆とグリーフケア』，医学書院，2018：243 p. – reference: ［6］［9］小野若菜子『家族介護者に対して訪問看護師が行うグリーフケアとアウトカムの構成概念の検討』，日本看護科学会誌.，2011； 31（1）： p.25-35 – reference: ［1］関口健二『認知症の生命予後と終末期，どう判断する？』，医学界新聞，医学書，2017；4-3 https://www.igakushoin.co.jp/paper/archie/y2017/ PA03218_04（閲覧日2023.2.10） – reference: ［7］坂口幸弘『超高齢社会における死別とグリーフケア』，老年看護学， 2021；（ 2）： p.16-20 – reference: ［15］平賀睦『遺族の心の整理を促すための訪問看護師による効果的な遺族訪問方法の検討－実施時期に焦点をあてて－』， Japanese Red Cross Hiroshima College of Nursing，2017；17： p.58-65. |
| SSID | ssib055934320 ssib055934713 ssib059230113 |
| Score | 1.9648467 |
| Snippet | This study aims to determine visiting nurses’ perception of grief care they provide to bereaved families of patients with dementia. A questionnaire survey was... This study aims to determine visiting nurses’ perception of grief care they provide to bereaved families of patients with dementia. A questionnaire survey was... |
| SourceID | nii jstage |
| SourceType | Publisher |
| StartPage | 41 |
| SubjectTerms | grief care , visiting nurse , dementia, bereaved family , content analysis グリーフケア，訪問看護師，認知症，遺族，内容分析 |
| Title | Grief Care for Bereaved Families of Patients with Dementia as Perceived by Visiting Nurses |
| URI | https://www.jstage.jst.go.jp/article/healthc/1/2/1_41/_article/-char/en https://cir.nii.ac.jp/crid/1390583238591312384 |
| Volume | 1 |
| hasFullText | 1 |
| inHoldings | 1 |
| isFullTextHit | |
| isPrint | |
| ispartofPNX | journal of society for healthcare and community involvement, 2024, Vol.1(2), pp.41-49 |
| journalDatabaseRights | – providerCode: PRVHPJ databaseName: ROAD: Directory of Open Access Scholarly Resources databaseCode: M~E dateStart: 20240101 customDbUrl: isFulltext: true eissn: 2759-4084 dateEnd: 99991231 titleUrlDefault: https://road.issn.org omitProxy: true ssIdentifier: ssib059230113 providerName: ISSN International Centre |
| link | http://utb.summon.serialssolutions.com/2.0.0/link/0/eLvHCXMwnV1Bb9MwFLZgXLigIUAMGPKBG8pIYydOjgMGE2iIQ0ETl8h2bEildYh2RePAb-d7ttOmCAnYoVaaVE-RP_f5e0_vfWbsCbYk33ldZrUxJpNNJTOT-yoTzja6Mk6XlvIdJ--q4w_yzWl5ujlWMXSXLM2B_fHHvpKroIp7wJW6ZP8D2bVR3MA18MUIhDH-E8avEef60EIUqgWfOzDAFRhkOM2ij3Ky76NwaupiexmygdSItaDid-v6VaSgH3sq3pp_DumDVFeYOOtIXGIxqvH8sqkcS71x1GmypD5CuLzVVknNW_1d909P9OXFWT_OMxSbDOOVTLvgwgpVNohQ4yFwa387WlbFyHdGAay0C0cd09_9e0Vya0AlvcYBAvyWVAtuFAo8gwo3fx4N3gShEjXN5lvf1Ya8lKC2cG4i6j0Fy8-27YKUzEDRSXvh-rzvR7xjustupYCBH0b0b7NrM32HfQrIc0KeY8L4gDwfkOfnng_Ic0KeD8hzveBr5Lm55APyPCJ_l01fHU1fHGfplIxsVkuZudp1XVNo5eB-beUrr0XRKVEq2dmJFbr2paF0NbiaVbnHj43S2OHKpjFST8Q9tjM_n7v7jCMS9k51E5hUshJdXeCysrUTuc6NcHtMxflov0YllDat_DbNWztpC3zkZP2AWgfxT91j-5jA1vY0IubIS2wkgqQTBZhTLR_85flDdpOWZEx9PWI7y28Xbh9kcGkeB8x_AQnbZn4 |
| linkProvider | ISSN International Centre |
| openUrl | ctx_ver=Z39.88-2004&ctx_enc=info%3Aofi%2Fenc%3AUTF-8&rfr_id=info%3Asid%2Fsummon.serialssolutions.com&rft_val_fmt=info%3Aofi%2Ffmt%3Akev%3Amtx%3Ajournal&rft.genre=article&rft.atitle=Grief+Care+for+Bereaved+Families+of+Patients+with+Dementia+as+Perceived+by+Visiting+Nurses&rft.jtitle=journal+of+society+for+healthcare+and+community+involvement&rft.au=Kawai+Mayumi&rft.date=2024&rft.pub=society+for+healthcare+and+community+involvement&rft.eissn=2759-4084&rft.volume=1&rft.issue=2&rft.spage=41&rft.epage=49&rft_id=info:doi/10.60433%2Fhealthc.1.2_41 |