Training and pilot implementation of the World Health Organization’s caregiver skills training program in Egypt
There are numerous challenges in the Eastern Mediterranean Region to access timely and appropriate autism-related care. The small body of research in Egypt finds a dearth of adequately trained professionals and services for young autistic children and their caregivers. This brief report summarizes e...
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Published in | Research in Autism Vol. 127; p. 202659 |
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Main Authors | , , , , , , , , , , , |
Format | Journal Article |
Language | English |
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Elsevier Ltd
01.09.2025
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Online Access | Get full text |
ISSN | 3050-6565 |
DOI | 10.1016/j.reia.2025.202659 |
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Abstract | There are numerous challenges in the Eastern Mediterranean Region to access timely and appropriate autism-related care. The small body of research in Egypt finds a dearth of adequately trained professionals and services for young autistic children and their caregivers. This brief report summarizes efforts to engage local and global partners to train Egyptian professionals to deliver the World Health Organization’s Caregiver Skills Training program, a caregiver-mediated intervention (nine group and three individual sessions) designed explicitly to fill in the global gap of autism services. We used qualitative and quantitative methods to assess local professionals’ perspectives on the intervention, the implementation climate, intervention delivery, and future training of non-specialists. We trained 16 full-time public health employees on the intervention, who reported on their confidence to deliver the intervention, strategies to train non-specialists, and knowledge of which children would benefit. They also reported on potential barriers implementing the intervention. Our research underscored the value of having a range of local and global partners to collectively address provider and intervention shortages in resource-limited countries.
•Services are limited for children with autism and their families in Egypt.•Egyptian and global partners trained providers on the WHO Caregiver Skills Training program.•Providers felt confident using the program for parents of young autistic children.•Global and local partners can work together to address resource limitations. |
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AbstractList | There are numerous challenges in the Eastern Mediterranean Region to access timely and appropriate autism-related care. The small body of research in Egypt finds a dearth of adequately trained professionals and services for young autistic children and their caregivers. This brief report summarizes efforts to engage local and global partners to train Egyptian professionals to deliver the World Health Organization’s Caregiver Skills Training program, a caregiver-mediated intervention (nine group and three individual sessions) designed explicitly to fill in the global gap of autism services. We used qualitative and quantitative methods to assess local professionals’ perspectives on the intervention, the implementation climate, intervention delivery, and future training of non-specialists. We trained 16 full-time public health employees on the intervention, who reported on their confidence to deliver the intervention, strategies to train non-specialists, and knowledge of which children would benefit. They also reported on potential barriers implementing the intervention. Our research underscored the value of having a range of local and global partners to collectively address provider and intervention shortages in resource-limited countries.
•Services are limited for children with autism and their families in Egypt.•Egyptian and global partners trained providers on the WHO Caregiver Skills Training program.•Providers felt confident using the program for parents of young autistic children.•Global and local partners can work together to address resource limitations. |
ArticleNumber | 202659 |
Author | Dababnah, Sarah Theis, Andrea Dixon, Pamela Yusuf, Afiqah Gaber, Eman Eskander, Stephanie Kotb, Heba W. Elshafey, Hadeer Ramzy, Sherine Ibrahim, Alaa T. Elsabbagh, Mayada Elsherif, Aya |
Author_xml | – sequence: 1 givenname: Sarah orcidid: 0000-0001-8298-1639 surname: Dababnah fullname: Dababnah, Sarah email: sdababnah@ssw.umaryland.edu organization: University of Maryland, Baltimore, MD, USA – sequence: 2 givenname: Alaa T. surname: Ibrahim fullname: Ibrahim, Alaa T. organization: The Montreal Neurological Institute-Hospital, McGill University, Montreal, Quebec, Canada – sequence: 3 givenname: Afiqah surname: Yusuf fullname: Yusuf, Afiqah organization: The Montreal Neurological Institute-Hospital, McGill University, Montreal, Quebec, Canada – sequence: 4 givenname: Eman surname: Gaber fullname: Gaber, Eman organization: Egyptian Ministry of Health and Population, General Secretariat for Mental Health and Addiction Treatment, Cairo, Egypt – sequence: 5 givenname: Hadeer surname: Elshafey fullname: Elshafey, Hadeer organization: Egyptian Ministry of Health and Population, General Secretariat for Mental Health and Addiction Treatment, Cairo, Egypt – sequence: 6 givenname: Heba W. surname: Kotb fullname: Kotb, Heba W. organization: The American University in Cairo, Cairo, Egypt – sequence: 7 givenname: Mayada surname: Elsabbagh fullname: Elsabbagh, Mayada organization: The Montreal Neurological Institute-Hospital, McGill University, Montreal, Quebec, Canada – sequence: 8 givenname: Sherine surname: Ramzy fullname: Ramzy, Sherine organization: The American University in Cairo, Cairo, Egypt – sequence: 9 givenname: Stephanie surname: Eskander fullname: Eskander, Stephanie organization: The American University in Cairo, Cairo, Egypt – sequence: 10 givenname: Andrea surname: Theis fullname: Theis, Andrea organization: University of Maryland, Baltimore, MD, USA – sequence: 11 givenname: Aya surname: Elsherif fullname: Elsherif, Aya organization: The American University in Cairo, Cairo, Egypt – sequence: 12 givenname: Pamela surname: Dixon fullname: Dixon, Pamela organization: Autism Speaks, Washington DC, USA |
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Cites_doi | 10.17712/nsj.2023.2.20220098 10.4103/AJOP.AJOP_4_18 10.1177/1362361319833929 10.1038/s41598-022-21343-9 10.1002/aur.239 10.1016/j.jnma.2023.01.017 10.1007/s10803-022-05800-y 10.1111/dmcn.15764 10.1002/aur.2696 10.1192/apt.22.3.146 10.1177/1362361319848532 10.1002/aur.2276 10.1001/jama.2015.3150 10.1002/brb3.3067 10.1111/bld.12250 10.3390/socsci7080133 10.1007/s40489-021-00278-3 10.1007/s10567-021-00358-0 10.1097/01.XME.0000430433.49160.a4 10.1186/s12888-020-02973-7 10.3389/fpsyt.2022.909947 10.1186/s13012-018-0736-7 10.1016/S0140-6736(16)31229-6 10.2196/jmir.6651 10.3389/fpsyt.2019.00769 10.1016/j.hlpt.2021.100577 10.1097/MS9.0000000000001107 10.1007/s40489-020-00198-8 10.1177/1362361319830042 10.1186/s12888-023-04977-5 10.1007/s10803-021-05367-0 10.1080/16549716.2023.2179163 10.1007/s40489-021-00249-8 10.3389/fpsyt.2022.915263 10.1080/1034912X.2015.1049127 10.1016/j.jbi.2019.103208 10.1016/j.jbi.2008.08.010 |
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Keywords | Parenting Early intervention Autism World Health Organization Health inequities Egypt Neurodevelopment Caregiver skills training Developmental delay Developmental disabilities |
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