Factors affecting quality of life of caregivers of children diagnosed with autism spectrum disorder
Context: Since autism spectrum disorder (ASD) is a lifelong disease and because of its nature, the negative effects of the disease on the quality of life (QoL) of caregivers as well as patients are incontrovertible. Aims: It was aimed to evaluate the effect of the variables related to both parents a...
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| Published in | Indian journal of psychiatry Vol. 60; no. 3; pp. 278 - 285 |
|---|---|
| Main Authors | , , |
| Format | Journal Article |
| Language | English |
| Published |
India
Wolters Kluwer India Pvt. Ltd
01.07.2018
Medknow Publications and Media Pvt. Ltd Medknow Publications & Media Pvt. Ltd Medknow Publications & Media Pvt Ltd |
| Subjects | |
| Online Access | Get full text |
| ISSN | 0019-5545 1998-3794 1998-3794 |
| DOI | 10.4103/psychiatry.IndianJPsychiatry_300_17 |
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| Abstract | Context: Since autism spectrum disorder (ASD) is a lifelong disease and because of its nature, the negative effects of the disease on the quality of life (QoL) of caregivers as well as patients are incontrovertible.
Aims: It was aimed to evaluate the effect of the variables related to both parents and children on the QoL scores of the parents of the children with ASD.
Settings and Design: This is a causality analysis study.
Subjects and Methods: Questionnaire on sociodemographic/disease-related variables, QoL in Autism Questionnaire-Parent Version (QoLA-P), autism behavior checklist and Clinical Global Impression scale were assessed of 162 patients with ASD.
Statistical Analysis Used: Unpaired t- test, Mann-Whitney U test, Kruskal-Wallis test, and one-way ANOVA test were used for comparing groups. The parameters found to be statistically significant for QoLA-P in different analyses were included as the independent variable in the logistic regression analysis. The backward (variable elimination) model was selected as the model in the analysis.
Results: The causality has been established may be stated as the severity of autism, the presence of psychiatric disorder in the mother/father, attendance of the child at school, duration since the diagnosis of autism, and the child's medication use.
Conclusions: Autism affects the QoL of caregivers. The intervention of treatment by considering the factors that affect the QoL positively or negatively may increase the QoL of caregivers. |
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| AbstractList | Since autism spectrum disorder (ASD) is a lifelong disease and because of its nature, the negative effects of the disease on the quality of life (QoL) of caregivers as well as patients are incontrovertible.CONTEXTSince autism spectrum disorder (ASD) is a lifelong disease and because of its nature, the negative effects of the disease on the quality of life (QoL) of caregivers as well as patients are incontrovertible.It was aimed to evaluate the effect of the variables related to both parents and children on the QoL scores of the parents of the children with ASD.AIMSIt was aimed to evaluate the effect of the variables related to both parents and children on the QoL scores of the parents of the children with ASD.This is a causality analysis study.SETTINGS AND DESIGNThis is a causality analysis study.Questionnaire on sociodemographic/disease-related variables, QoL in Autism Questionnaire-Parent Version (QoLA-P), autism behavior checklist and Clinical Global Impression scale were assessed of 162 patients with ASD.SUBJECTS AND METHODSQuestionnaire on sociodemographic/disease-related variables, QoL in Autism Questionnaire-Parent Version (QoLA-P), autism behavior checklist and Clinical Global Impression scale were assessed of 162 patients with ASD.Unpaired t- test, Mann-Whitney U test, Kruskal-Wallis test, and one-way ANOVA test were used for comparing groups. The parameters found to be statistically significant for QoLA-P in different analyses were included as the independent variable in the logistic regression analysis. The backward (variable elimination) model was selected as the model in the analysis.STATISTICAL ANALYSIS USEDUnpaired t- test, Mann-Whitney U test, Kruskal-Wallis test, and one-way ANOVA test were used for comparing groups. The parameters found to be statistically significant for QoLA-P in different analyses were included as the independent variable in the logistic regression analysis. The backward (variable elimination) model was selected as the model in the analysis.The causality has been established may be stated as the severity of autism, the presence of psychiatric disorder in the mother/father, attendance of the child at school, duration since the diagnosis of autism, and the child's medication use.RESULTSThe causality has been established may be stated as the severity of autism, the presence of psychiatric disorder in the mother/father, attendance of the child at school, duration since the diagnosis of autism, and the child's medication use.Autism affects the QoL of caregivers. The intervention of treatment by considering the factors that affect the QoL positively or negatively may increase the QoL of caregivers.CONCLUSIONSAutism affects the QoL of caregivers. The intervention of treatment by considering the factors that affect the QoL positively or negatively may increase the QoL of caregivers. Since autism spectrum disorder (ASD) is a lifelong disease and because of its nature, the negative effects of the disease on the quality of life (QoL) of caregivers as well as patients are incontrovertible. It was aimed to evaluate the effect of the variables related to both parents and children on the QoL scores of the parents of the children with ASD. This is a causality analysis study. Questionnaire on sociodemographic/disease-related variables, QoL in Autism Questionnaire-Parent Version (QoLA-P), autism behavior checklist and Clinical Global Impression scale were assessed of 162 patients with ASD. Unpaired t- test, Mann-Whitney U test, Kruskal-Wallis test, and one-way ANOVA test were used for comparing groups. The parameters found to be statistically significant for QoLA-P in different analyses were included as the independent variable in the logistic regression analysis. The backward (variable elimination) model was selected as the model in the analysis. The causality has been established may be stated as the severity of autism, the presence of psychiatric disorder in the mother/father, attendance of the child at school, duration since the diagnosis of autism, and the child's medication use. Autism affects the QoL of caregivers. The intervention of treatment by considering the factors that affect the QoL positively or negatively may increase the QoL of caregivers. Context: Since autism spectrum disorder (ASD) is a lifelong disease and because of its nature, the negative effects of the disease on the quality of life (QoL) of caregivers as well as patients are incontrovertible. Aims: It was aimed to evaluate the effect of the variables related to both parents and children on the QoL scores of the parents of the children with ASD. Settings and Design: This is a causality analysis study. Subjects and Methods: Questionnaire on sociodemographic/disease-related variables, QoL in Autism Questionnaire-Parent Version (QoLA-P), autism behavior checklist and Clinical Global Impression scale were assessed of 162 patients with ASD. Statistical Analysis Used: Unpaired t- test, Mann-Whitney U test, Kruskal-Wallis test, and one-way ANOVA test were used for comparing groups. The parameters found to be statistically significant for QoLA-P in different analyses were included as the independent variable in the logistic regression analysis. The backward (variable elimination) model was selected as the model in the analysis. Results: The causality has been established may be stated as the severity of autism, the presence of psychiatric disorder in the mother/father, attendance of the child at school, duration since the diagnosis of autism, and the child's medication use. Conclusions: Autism affects the QoL of caregivers. The intervention of treatment by considering the factors that affect the QoL positively or negatively may increase the QoL of caregivers. Context: Since autism spectrum disorder (ASD) is a lifelong disease and because of its nature, the negative effects of the disease on the quality of life (QoL) of caregivers as well as patients are incontrovertible. Aims: It was aimed to evaluate the effect of the variables related to both parents and children on the QoL scores of the parents of the children with ASD. Settings and Design: This is a causality analysis study. Subjects and Methods: Questionnaire on sociodemographic/disease-related variables, QoL in Autism Questionnaire-Parent Version (QoLA-P), autism behavior checklist and Clinical Global Impression scale were assessed of 162 patients with ASD. Statistical Analysis Used: Unpaired t- test, Mann–Whitney U test, Kruskal–Wallis test, and one-way ANOVA test were used for comparing groups. The parameters found to be statistically significant for QoLA-P in different analyses were included as the independent variable in the logistic regression analysis. The backward (variable elimination) model was selected as the model in the analysis. Results: The causality has been established may be stated as the severity of autism, the presence of psychiatric disorder in the mother/father, attendance of the child at school, duration since the diagnosis of autism, and the child's medication use. Conclusions: Autism affects the QoL of caregivers. The intervention of treatment by considering the factors that affect the QoL positively or negatively may increase the QoL of caregivers. |
| Audience | Academic |
| Author | Ozgur, Borte Aksu, Hatice Eser, Erhan |
| AuthorAffiliation | 1 Department of Child and Adolescent Psychiatry, Adnan Menderes University, 09010 Efeler/Aydin, Turkey 2 Department of Public Health, Celal Bayar University, Manisa, Turkey Department of Child and Adolescent Psychiatry, Mugla Sitki Kocman University Training and Research Hospital, Mugla, Turkey |
| AuthorAffiliation_xml | – name: 1 Department of Child and Adolescent Psychiatry, Adnan Menderes University, 09010 Efeler/Aydin, Turkey – name: Department of Child and Adolescent Psychiatry, Mugla Sitki Kocman University Training and Research Hospital, Mugla, Turkey – name: 2 Department of Public Health, Celal Bayar University, Manisa, Turkey |
| Author_xml | – sequence: 1 givenname: Borte surname: Ozgur fullname: Ozgur, Borte organization: Department of Child and Adolescent Psychiatry, Mugla Sitki Kocman University Training and Research Hospital, Mugla – sequence: 2 givenname: Hatice surname: Aksu fullname: Aksu, Hatice organization: Department of Child and Adolescent Psychiatry, Adnan Menderes University, 09010 Efeler/Aydin – sequence: 3 givenname: Erhan surname: Eser fullname: Eser, Erhan organization: Department of Public Health, Celal Bayar University, Manisa |
| BackLink | https://www.ncbi.nlm.nih.gov/pubmed/30405252$$D View this record in MEDLINE/PubMed |
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| Snippet | Context: Since autism spectrum disorder (ASD) is a lifelong disease and because of its nature, the negative effects of the disease on the quality of life (QoL)... Since autism spectrum disorder (ASD) is a lifelong disease and because of its nature, the negative effects of the disease on the quality of life (QoL) of... |
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| SubjectTerms | Analysis Autism Autistic children Care and treatment Caregivers Child & adolescent psychiatry Children Children & youth Communication Families & family life Health aspects Kruskal-Wallis test Original Parents & parenting Patients Pervasive developmental disorders Psychological aspects Quality of life Questionnaires Social aspects Sociodemographics Special education Statistical analysis Studies Validity Variables |
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| Title | Factors affecting quality of life of caregivers of children diagnosed with autism spectrum disorder |
| URI | http://www.indianjpsychiatry.org/article.asp?issn=0019-5545;year=2018;volume=60;issue=3;spage=278;epage=285;aulast=Ozgur;type=0 https://www.ncbi.nlm.nih.gov/pubmed/30405252 https://www.proquest.com/docview/2122242504 https://www.proquest.com/docview/2131235780 https://pubmed.ncbi.nlm.nih.gov/PMC6201674 https://doi.org/10.4103/psychiatry.indianjpsychiatry_300_17 |
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