The IDeaS initiative: pilot study to assess the impact of rare diseases on patients and healthcare systems - Tisdale, Ainslie; Cutillo, Christine M.; Nathan, Ramaa; Russo, Pierantonio; Laraway, Bryan; Haendel, Melissa; Nowak, Douglas; Hasche, Cindy; Chan, Chun-Hung; Griese, Emily; Dawkins, Hugh; Shukla, Oodaye; et al. (Orphanet journal of rare diseases, 2021)
Keywords: Analysis; Care and treatment; Codes; Coding standards; Complications and side effects; Cost control; Cost estimates; Costs and Cost Analysis; Cystic fibrosis; Delivery of Health Care; Diagnosis; Disease; Economic aspects; Epidemiology; Health care; Health care costs; Health care expenditures; Hospitals; Human Genetics; Humans; Learning algorithms; Machine Learning; Medical care; Medical care, Cost of; Medical diagnosis; Medical records; Medical research; Medicine; Medicine & Public Health; Patients; Pharmacology/Toxicology; Pilot Projects; Public health; Rare Diseases; Utilization; United States; Oregon; Australia; United States--US; Rare diseases; Health care costs; Utilization; Diagnosis