Focus groups for developing a peer mentoring program to improve self-management in pediatric inflammatory bowel disease

• Published in: Journal of pediatric gastroenterology and nutrition Vol. 59; no. 4; p. 487
• Main Authors: Mackner, Laura M, Ruff, Jessica M, Vannatta, Kathryn
• Format: Journal Article
• Language: English
• Published: United States 01.10.2014
• Subjects: Adolescent; Adult; Disease Management; Female; Focus Groups; Humans; Inflammatory Bowel Diseases - therapy; Learning; Male; Mentors; Parents; Patient Education as Topic; Pediatrics; Peer Group; Program Evaluation; Self Care; Surveys and Questionnaires; Young Adult
• ISSN: 0277-2116; 1536-4801; 1536-4801
• DOI: 10.1097/MPG.0000000000000473

Inflammatory bowel disease (IBD) presents challenges for self-management in many areas. A peer mentoring program may offer advantages over other forms of self-management interventions because youth may be more receptive to learning self-management skills from a peer than from a parent or professional. The purpose of the present study was to identify themes from focus groups to inform development of a peer mentoring program for improving self-management in pediatric IBD. Focus groups were conducted for youth ages 12 to 17, stratified by age (3 groups; n = 14), young adults ages 18 to 20 (1 group; n = 5), and parents of the youth (3 groups; n = 17). Broad questions covered program goals, general program characteristics, mentor/mentee characteristics, and family involvement, and transcriptions were analyzed via directed content analysis, with the a priori codes specified as the broad questions above. Participants identified the primary goals of a program as support, role model, information/education, and fun. They described a program that would include a year-long, 1-on-1 mentor relationship with a peer who has had IBD for at least a year, educational group activities, fun activities that are not focused on IBD, expectations for in-person contact 1 to 2 times per month, and mentor-to-mentor and parent support. Many of the suggestions from the focus groups correspond with research findings associated with successful mentoring programs. Using participants' suggestions and empirically based best practices for mentoring may result in an effective peer mentoring program for improving self-management in youth with IBD.