What motivates patients and caregivers to engage in health research and how engagement affects their lives: Qualitative survey findings - Hemphill, Rachel; Forsythe, Laura P.; Heckert, Andrea L.; Amolegbe, Andrew; Maurer, Maureen; Carman, Kristin L.; Mangrum, Rikki; Stewart, Lisa; Fearon, Ninma; Esmail, Laura (Health expectations : an international journal of public participation in health care and health policy, 2020)
Keywords: Advocacy; Caregivers; Clinical decision making; Clinical outcomes; comparative effectiveness research; Data collection; Decision making; Families & family life; Habits; Health care; Health care reform; Health research; Health services; Health status; Medical research; Medicine, Experimental; Motivation; Organizations; Original Research Paper; Original Research Papers; Participation; Partnerships; Patient communication; patient engagement; patient participation; Patient-centered care; Patients; patient‐centered research; Policy making; Polls & surveys; Prioritizing; Research institutes; Research partnerships; Research projects; Responses; stakeholder participation; Stakeholders; Surveys; Teams; Underserved populations; United Kingdom--UK; United States--US; patient-centered research; comparative effectiveness research; patient engagement; stakeholder participation; patient participation; motivation