Caregiving for Patients With Frontotemporal Dementia in Latin America
Latin America is a vast heterogeneous territory where chronic diseases such as mild cognitive impairment or dementia are becoming higher. Frontotemporal dementia (FTD) prevalence in this region is estimated to be around 12–18 cases per thousand persons. However, this prevalence is underestimated giv...
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| Published in | Frontiers in neurology Vol. 12; p. 665694 |
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| Main Authors | , , , |
| Format | Journal Article |
| Language | English |
| Published |
Switzerland
Frontiers Media S.A
07.07.2021
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| Subjects | |
| Online Access | Get full text |
| ISSN | 1664-2295 1664-2295 |
| DOI | 10.3389/fneur.2021.665694 |
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| Abstract | Latin America is a vast heterogeneous territory where chronic diseases such as mild cognitive impairment or dementia are becoming higher. Frontotemporal dementia (FTD) prevalence in this region is estimated to be around 12–18 cases per thousand persons. However, this prevalence is underestimated given the lack of awareness of FTD even among healthcare professionals. Family members are responsible for the care of patients with FTD at home. These caregivers deliver care despite being ill-equipped and living in the context of austerity policies and social inequities. They often face unsurmountable financial and social burdens that are specific to the region. The most important step to support caregivers in Latin America is to increase awareness of the disease at all levels. Healthcare diplomacy is fundamental to create joint efforts that push policies forward to protect caregivers of FTD patients. |
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| AbstractList | Latin America is a vast heterogeneous territory where chronic diseases such as mild cognitive impairment or dementia are becoming higher. Frontotemporal dementia (FTD) prevalence in this region is estimated to be around 12-18 cases per thousand persons. However, this prevalence is underestimated given the lack of awareness of FTD even among healthcare professionals. Family members are responsible for the care of patients with FTD at home. These caregivers deliver care despite being ill-equipped and living in the context of austerity policies and social inequities. They often face unsurmountable financial and social burdens that are specific to the region. The most important step to support caregivers in Latin America is to increase awareness of the disease at all levels. Healthcare diplomacy is fundamental to create joint efforts that push policies forward to protect caregivers of FTD patients.Latin America is a vast heterogeneous territory where chronic diseases such as mild cognitive impairment or dementia are becoming higher. Frontotemporal dementia (FTD) prevalence in this region is estimated to be around 12-18 cases per thousand persons. However, this prevalence is underestimated given the lack of awareness of FTD even among healthcare professionals. Family members are responsible for the care of patients with FTD at home. These caregivers deliver care despite being ill-equipped and living in the context of austerity policies and social inequities. They often face unsurmountable financial and social burdens that are specific to the region. The most important step to support caregivers in Latin America is to increase awareness of the disease at all levels. Healthcare diplomacy is fundamental to create joint efforts that push policies forward to protect caregivers of FTD patients. Latin America is a vast heterogeneous territory where chronic diseases such as mild cognitive impairment or dementia are becoming higher. Frontotemporal dementia (FTD) prevalence in this region is estimated to be around 12–18 cases per thousand persons. However, this prevalence is underestimated given the lack of awareness of FTD even among healthcare professionals. Family members are responsible for the care of patients with FTD at home. These caregivers deliver care despite being ill-equipped and living in the context of austerity policies and social inequities. They often face unsurmountable financial and social burdens that are specific to the region. The most important step to support caregivers in Latin America is to increase awareness of the disease at all levels. Healthcare diplomacy is fundamental to create joint efforts that push policies forward to protect caregivers of FTD patients. |
| Author | Javandel, Shireen Aguirre, Gloria Annette Piña-Escudero, Stefanie Danielle Longoria-Ibarrola, Erika Mariana |
| AuthorAffiliation | 2 Instituto Nacional de Ciencias Médicas y Nutrición Salvador Zubirán , Mexico City , Mexico 3 Department of Neurology, Memory and Aging Center, University of California, San Francisco , San Francisco, CA , United States 1 The Global Brain Health Institute, University of California, San Francisco , San Francisco, CA , United States and Trinity College , Dublin , Ireland 4 Instituto Nacional de Neurología y Neurocirugía José Velazco Suárez , Mexico City , Mexico |
| AuthorAffiliation_xml | – name: 1 The Global Brain Health Institute, University of California, San Francisco , San Francisco, CA , United States and Trinity College , Dublin , Ireland – name: 4 Instituto Nacional de Neurología y Neurocirugía José Velazco Suárez , Mexico City , Mexico – name: 2 Instituto Nacional de Ciencias Médicas y Nutrición Salvador Zubirán , Mexico City , Mexico – name: 3 Department of Neurology, Memory and Aging Center, University of California, San Francisco , San Francisco, CA , United States |
| Author_xml | – sequence: 1 givenname: Stefanie Danielle surname: Piña-Escudero fullname: Piña-Escudero, Stefanie Danielle – sequence: 2 givenname: Gloria Annette surname: Aguirre fullname: Aguirre, Gloria Annette – sequence: 3 givenname: Shireen surname: Javandel fullname: Javandel, Shireen – sequence: 4 givenname: Erika Mariana surname: Longoria-Ibarrola fullname: Longoria-Ibarrola, Erika Mariana |
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| CitedBy_id | crossref_primary_10_1002_pchj_565 crossref_primary_10_1002_alz_13129 crossref_primary_10_3389_fneur_2021_768591 |
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| Copyright | Copyright © 2021 Piña-Escudero, Aguirre, Javandel and Longoria-Ibarrola. Copyright © 2021 Piña-Escudero, Aguirre, Javandel and Longoria-Ibarrola. 2021 Piña-Escudero, Aguirre, Javandel and Longoria-Ibarrola |
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| Keywords | caregivers dementia frontotemporal dementia caregiver burden Latin America |
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| Notes | ObjectType-Article-1 SourceType-Scholarly Journals-1 ObjectType-Feature-2 content type line 23 Edited by: Andrea Slachevsky, University of Chile, Chile This article was submitted to Dementia and Neurodegenerative Diseases, a section of the journal Frontiers in Neurology Reviewed by: Akitoshi Takeda, Osaka City University, Japan; Gang Wang, Shanghai Jiao Tong University, China |
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| Title | Caregiving for Patients With Frontotemporal Dementia in Latin America |
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