Health‐related quality of life in paediatric haemophilia B patients treated with rIX‐FP - von Mackensen, Sylvia; Shah, Jinesh; Seifert, Wilfried; Kenet, Gili (Haemophilia : the official journal of the World Federation of Hemophilia, 2019)
Keywords: Age groups; Caregivers; Caregivers - psychology; Child; Child, Preschool; Coagulants - therapeutic use; Coagulation factors; Drug Administration Schedule; Exercise; extended half‐life product; Factor IX - therapeutic use; Factor IX deficiency; Fusion protein; Haemo‐QoL; health‐related quality of life; Hemophilia; Hemophilia B - drug therapy; Hemo‐SatP; Humans; Male; minimal important difference; Original; ORIGINAL ARTICLES; Patients; Physical activity; Prophylaxis; Quality of Life; Questionnaires; Recombinant Fusion Proteins - therapeutic use; responder definitions; Serum Albumin - therapeutic use; Surveys and Questionnaires; treatment satisfaction; Hemo-SatP; treatment satisfaction; Haemo-QoL; extended half-life product; health-related quality of life; responder definitions; minimal important difference