Stigma experienced by families of individuals with intellectual disabilities and autism: A systematic review
Studies have investigated the experiences of courtesy stigma and affiliate stigma in family members of individuals with intellectual and developmental disabilities (IDD) without a clear distinction between the two. This systematic literature review aimed to evaluate the findings of studies that exam...
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| Published in | Research in developmental disabilities Vol. 89; no. NA; pp. 10 - 21 |
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| Main Authors | , , |
| Format | Journal Article |
| Language | English |
| Published |
United States
Elsevier Ltd
01.06.2019
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| Subjects | |
| Online Access | Get full text |
| ISSN | 0891-4222 1873-3379 1873-3379 |
| DOI | 10.1016/j.ridd.2019.03.001 |
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| Abstract | Studies have investigated the experiences of courtesy stigma and affiliate stigma in family members of individuals with intellectual and developmental disabilities (IDD) without a clear distinction between the two. This systematic literature review aimed to evaluate the findings of studies that examined the experiences of stigma in families of individuals with intellectual disabilities and/or autism. A systematic search of PsycINFO, ERIC and Scopus identified relevant articles published between 2012 and 2016, to expand on an earlier review on this topic published in 2012.
Ten articles pertaining to eight studies were identified. They revealed that family carers do experience stigma and various consequences related to these, with family culture influencing these experiences. This review identifies a number of psychosocial variables that are associated with the development of courtesy stigma, affiliate stigma and their consequences. It highlights protective factors and strategies family carers use to cope with stigma, and a lack of clarity in distinguishing the concepts of courtesy stigma and affiliate stigma in family members. |
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| AbstractList | Studies have investigated the experiences of courtesy stigma and affiliate stigma in family members of individuals with intellectual and developmental disabilities (IDD) without a clear distinction between the two. This systematic literature review aimed to evaluate the findings of studies that examined the experiences of stigma in families of individuals with intellectual disabilities and/or autism. A systematic search of PsycINFO, ERIC and Scopus identified relevant articles published between 2012 and 2016, to expand on an earlier review on this topic published in 2012. Ten articles pertaining to eight studies were identified. They revealed that family carers do experience stigma and various consequences related to these, with family culture influencing these experiences. This review identifies a number of psychosocial variables that are associated with the development of courtesy stigma, affiliate stigma and their consequences. It highlights protective factors and strategies family carers use to cope with stigma, and a lack of clarity in distinguishing the concepts of courtesy stigma and affiliate stigma in family members.Studies have investigated the experiences of courtesy stigma and affiliate stigma in family members of individuals with intellectual and developmental disabilities (IDD) without a clear distinction between the two. This systematic literature review aimed to evaluate the findings of studies that examined the experiences of stigma in families of individuals with intellectual disabilities and/or autism. A systematic search of PsycINFO, ERIC and Scopus identified relevant articles published between 2012 and 2016, to expand on an earlier review on this topic published in 2012. Ten articles pertaining to eight studies were identified. They revealed that family carers do experience stigma and various consequences related to these, with family culture influencing these experiences. This review identifies a number of psychosocial variables that are associated with the development of courtesy stigma, affiliate stigma and their consequences. It highlights protective factors and strategies family carers use to cope with stigma, and a lack of clarity in distinguishing the concepts of courtesy stigma and affiliate stigma in family members. Studies have investigated the experiences of courtesy stigma and affiliate stigma in family members of individuals with intellectual and developmental disabilities (IDD) without a clear distinction between the two. This systematic literature review aimed to evaluate the findings of studies that examined the experiences of stigma in families of individuals with intellectual disabilities and/or autism. A systematic search of PsycINFO, ERIC and Scopus identified relevant articles published between 2012 and 2016, to expand on an earlier review on this topic published in 2012. Ten articles pertaining to eight studies were identified. They revealed that family carers do experience stigma and various consequences related to these, with family culture influencing these experiences. This review identifies a number of psychosocial variables that are associated with the development of courtesy stigma, affiliate stigma and their consequences. It highlights protective factors and strategies family carers use to cope with stigma, and a lack of clarity in distinguishing the concepts of courtesy stigma and affiliate stigma in family members. Studies have investigated the experiences of courtesy stigma and affiliate stigma in family members of individuals with intellectual and developmental disabilities (IDD) without a clear distinction between the two. This systematic literature review aimed to evaluate the findings of studies that examined the experiences of stigma in families of individuals with intellectual disabilities and/or autism. A systematic search of PsycINFO, ERIC and Scopus identified relevant articles published between 2012 and 2016, to expand on an earlier review on this topic published in 2012. Ten articles pertaining to eight studies were identified. They revealed that family carers do experience stigma and various consequences related to these, with family culture influencing these experiences. This review identifies a number of psychosocial variables that are associated with the development of courtesy stigma, affiliate stigma and their consequences. It highlights protective factors and strategies family carers use to cope with stigma, and a lack of clarity in distinguishing the concepts of courtesy stigma and affiliate stigma in family members. |
| Author | Scior, Katrina Mitter, Natasha Ali, Afia |
| Author_xml | – sequence: 1 givenname: Natasha surname: Mitter fullname: Mitter, Natasha organization: Research Department of Clinical, Educational and Health Psychology, University College London, Gower Street, London WC1E 6BT, United Kingdom – sequence: 2 givenname: Afia surname: Ali fullname: Ali, Afia organization: Research Department of Clinical, Educational and Health Psychology, University College London, Gower Street, London WC1E 6BT, United Kingdom – sequence: 3 givenname: Katrina surname: Scior fullname: Scior, Katrina organization: Division of Psychiatry, University College London, Gower Street, London WC1E 6BT, United Kingdom |
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| Cites_doi | 10.2307/2095103 10.1111/jir.12116 10.1111/j.1365-2788.2009.01173.x 10.1016/j.ridd.2014.10.024 10.1111/jir.12136 10.1177/1049732302238251 10.1093/schbul/15.1.131 10.1007/s10803-015-2637-9 10.1037/0003-066X.46.4.352 10.1016/j.ridd.2009.10.009 10.1093/clipsy.7.1.48 10.1097/00004356-199306000-00011 10.1080/13269780050033526 10.1521/jscp.1988.7.2-3.192 10.1080/01973533.2012.746147 10.1093/oxfordjournals.schbul.a033304 10.1046/j.1468-3148.2002.00140.x 10.1016/j.ridd.2012.06.013 10.1606/1044-3894.221 10.1177/1744629515577909 10.1037/0003-066X.42.1.37 10.1111/j.1468-3148.2008.00426.x 10.1111/j.1365-2788.2012.01624.x 10.1348/000711299160202 10.1111/jir.12205 10.1176/appi.ps.201100459 10.1007/s12671-016-0580-2 10.1007/s10597-012-9534-x 10.1186/s12913-016-1383-9 10.1016/j.ridd.2013.08.029 |
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| Keywords | Affiliate stigma Autism Intellectual disability Family caregivers Developmental disability Courtesy stigma |
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| References | Phelan, Bromet, Link (bib0140) 1998; 24 Corrigan (bib0060) 2000; 7 Thoits (bib0165) 1983; 48 Sanders (bib0145) 2006; 27 Andersson (bib0010) 1993; 16 Mak, Cheung (bib0100) 2008; 21 Corrigan, Roe, Tsang (bib0065) 2011 Papadopoulos, Foster, Caldwell (bib0130) 2013; 49 Werner, Shulman (bib0185) 2015; 59 Mehta, Farina (bib0110) 1988; 7 Chou, Pu, Lee, Lin, Kröger (bib0050) 2009; 53 Baxter, Cummins, Yiolitis (bib0015) 2000; 3 Kung (bib0085) 2001; 82 Chiu, Yang, Wong, Li (bib0040) 2015; 36 Tilahun, Hanlon, Fekadu, Tekola, Baheretibeb, Hoekstra (bib0170) 2016; 16 Cinnirella, Loewenthal (bib0055) 1999; 72 Chiu, Yang, Wong, Li (bib0035) 2013; 57 Lazarus (bib0095) 1991; 46 (bib0150) 2016 Hawker, Payne, Kerr, Hardey, Powell (bib0075) 2002; 12 Kwok, Leung, Wong (bib0090) 2014; 58 McCarthy, Hemmings, Kravariti, Dworzynski, Holt, Bouras (bib0105) 2010; 31 Papadopoulos (bib0125) 2016 Yang (bib0195) 2015; 19 Wahl, Harman (bib0175) 1989; 15 Werner, Shulman (bib0180) 2013; 34 Kinnear, Link, Ballan, Fischbach (bib0080) 2015; 46 Sylwester (bib0160) 2001; 58 Chou, Palley (bib0045) 1998; 20 Blacher, Mink (bib0020) 2004 Bos, Pryor, Reeder, Stutterheim (bib0025) 2013; 35 Mittal, Sullivan, Chekuri (bib0115) 2012; 63 Ali, Hassiotis, Strydom, King (bib0005) 2012; 33 Wong, Mak, Liao (bib0190) 2016; 7 Perkins, Holburn, Deaux, Flory, Vietze (bib0135) 2002; 15 Sue, Zane (bib0155) 1987; 42 Cantwell, Muldoon, Gallagher (bib0030) 2015; 59 Goffman (bib0070) 1963 Ngo, Shin, Nhan, Yang (bib0120) 2012; 53 Corrigan (10.1016/j.ridd.2019.03.001_bib0065) 2011 Blacher (10.1016/j.ridd.2019.03.001_bib0020) 2004 Kung (10.1016/j.ridd.2019.03.001_bib0085) 2001; 82 Werner (10.1016/j.ridd.2019.03.001_bib0185) 2015; 59 Papadopoulos (10.1016/j.ridd.2019.03.001_bib0130) 2013; 49 Hawker (10.1016/j.ridd.2019.03.001_bib0075) 2002; 12 Sylwester (10.1016/j.ridd.2019.03.001_bib0160) 2001; 58 Thoits (10.1016/j.ridd.2019.03.001_bib0165) 1983; 48 Mak (10.1016/j.ridd.2019.03.001_bib0100) 2008; 21 Mehta (10.1016/j.ridd.2019.03.001_bib0110) 1988; 7 Werner (10.1016/j.ridd.2019.03.001_bib0180) 2013; 34 Andersson (10.1016/j.ridd.2019.03.001_bib0010) 1993; 16 Sue (10.1016/j.ridd.2019.03.001_bib0155) 1987; 42 Mittal (10.1016/j.ridd.2019.03.001_bib0115) 2012; 63 Lazarus (10.1016/j.ridd.2019.03.001_bib0095) 1991; 46 Ngo (10.1016/j.ridd.2019.03.001_bib0120) 2012; 53 Tilahun (10.1016/j.ridd.2019.03.001_bib0170) 2016; 16 Perkins (10.1016/j.ridd.2019.03.001_bib0135) 2002; 15 (10.1016/j.ridd.2019.03.001_bib0150) 2016 Bos (10.1016/j.ridd.2019.03.001_bib0025) 2013; 35 Papadopoulos (10.1016/j.ridd.2019.03.001_bib0125) 2016 Goffman (10.1016/j.ridd.2019.03.001_bib0070) 1963 Yang (10.1016/j.ridd.2019.03.001_bib0195) 2015; 19 Ali (10.1016/j.ridd.2019.03.001_bib0005) 2012; 33 Chiu (10.1016/j.ridd.2019.03.001_bib0040) 2015; 36 Chou (10.1016/j.ridd.2019.03.001_bib0050) 2009; 53 Chou (10.1016/j.ridd.2019.03.001_bib0045) 1998; 20 Kwok (10.1016/j.ridd.2019.03.001_bib0090) 2014; 58 McCarthy (10.1016/j.ridd.2019.03.001_bib0105) 2010; 31 Kinnear (10.1016/j.ridd.2019.03.001_bib0080) 2015; 46 Baxter (10.1016/j.ridd.2019.03.001_bib0015) 2000; 3 Cinnirella (10.1016/j.ridd.2019.03.001_bib0055) 1999; 72 Chiu (10.1016/j.ridd.2019.03.001_bib0035) 2013; 57 Sanders (10.1016/j.ridd.2019.03.001_bib0145) 2006; 27 Phelan (10.1016/j.ridd.2019.03.001_bib0140) 1998; 24 Wahl (10.1016/j.ridd.2019.03.001_bib0175) 1989; 15 Cantwell (10.1016/j.ridd.2019.03.001_bib0030) 2015; 59 Corrigan (10.1016/j.ridd.2019.03.001_bib0060) 2000; 7 Wong (10.1016/j.ridd.2019.03.001_bib0190) 2016; 7 |
| References_xml | – volume: 59 start-page: 948 year: 2015 end-page: 957 ident: bib0030 article-title: The influence of self-esteem and social support on the relationship between stigma and depressive symptomology in parents caring for children with intellectual disabilities publication-title: Journal of Intellectual Disability Research – volume: 33 start-page: 2122 year: 2012 end-page: 2140 ident: bib0005 article-title: Self stigma in people with intellectual disabilities and courtesy stigma in family carers: A systematic review publication-title: Research in Developmental Disabilities – volume: 46 start-page: 942 year: 2015 end-page: 953 ident: bib0080 article-title: Understanding the experience of stigma for parents of children with autism spectrum disorder and the role stigma plays in families’ lives publication-title: Journal of Autism and Developmental Disorders – volume: 49 start-page: 270 year: 2013 end-page: 280 ident: bib0130 article-title: ‘Individualism-Collectivism’ as an explanatory device for mental illness stigma publication-title: Community Mental Health Journal – volume: 24 start-page: 115 year: 1998 end-page: 126 ident: bib0140 article-title: Psychiatric illness and family stigma publication-title: Schizophrenia Bulletin – volume: 58 start-page: 1156 year: 2014 end-page: 1171 ident: bib0090 article-title: Marital satisfaction of Chinese mothers of children with autism and intellectual disabilities in Hong Kong publication-title: Journal of Intellectual Disability Research – year: 2011 ident: bib0065 article-title: Challenging the stigma of mental illness – volume: 19 start-page: 367 year: 2015 end-page: 380 ident: bib0195 article-title: No matter how I think, it already hurts publication-title: Journal of Intellectual Disabilities – volume: 82 start-page: 97 year: 2001 end-page: 107 ident: bib0085 article-title: Consideration of cultural factors in working with Chinese American families with a mentally ill patient publication-title: Families in Society – volume: 31 start-page: 362 year: 2010 end-page: 366 ident: bib0105 article-title: Challenging behavior and co-morbid psychopathology in adults with intellectual disability and autism spectrum disorders publication-title: Research in Developmental Disabilities – volume: 7 start-page: 192 year: 1988 end-page: 202 ident: bib0110 article-title: Associative stigma: Perceptions of the difficulties of college-aged children of stigmatized fathers publication-title: Journal of Social and Clinical Psychology – volume: 27 start-page: 181 year: 2006 end-page: 188 ident: bib0145 article-title: Overprotection and lowered expectations of persons with disabilities: The unforeseen consequences publication-title: Work – volume: 57 start-page: 1117 year: 2013 end-page: 1129 ident: bib0035 article-title: Caregiving of children with intellectual disabilities in china - an examination of affiliate stigma and the cultural thesis publication-title: Journal of Intellectual Disability Research – volume: 63 start-page: 974 year: 2012 end-page: 981 ident: bib0115 article-title: Empirical studies of self-stigma reduction strategies: A critical review of the literature publication-title: Psychiatric Services – volume: 53 start-page: 654 year: 2009 end-page: 664 ident: bib0050 article-title: Effect of perceived stigmatisation on the quality of life among ageing female family carers: A comparison of carers of adults with intellectual disability and carers of adults with mental illness publication-title: Journal of Intellectual Disability Research – volume: 72 start-page: 505 year: 1999 end-page: 524 ident: bib0055 article-title: Religious and ethnic group influences on beliefs about mental illness: A qualitative interview study publication-title: The British Journal of Medical Psychology – volume: 20 start-page: 35 year: 1998 end-page: 52 ident: bib0045 article-title: The impact of having a child with developmental disabilities on the family in Taiwan: Cultural context review publication-title: Social Development Issues – volume: 36 start-page: 437 year: 2015 end-page: 446 ident: bib0040 article-title: The mediating effect of affective stigma between face concern and general mental health – The case of Chinese caregivers of children with intellectual disability publication-title: Research in Developmental Disabilities – volume: 16 start-page: 1383 year: 2016 end-page: 1389 ident: bib0170 article-title: Stigma, explanatory models and unmet needs of caregivers of children with developmental disorders in a low-income African country: A cross-sectional facility-based survey publication-title: BMC Health Services Research – year: 2016 ident: bib0150 publication-title: Intellectual disability and stigma: Stepping out from the margins – volume: 42 start-page: 37 year: 1987 end-page: 45 ident: bib0155 article-title: The role of culture and cultural techniques in psychotherapy: A critique and reformulation publication-title: The American Psychologist – year: 1963 ident: bib0070 article-title: Stigma: Notes on the management of spoiled identity – volume: 53 start-page: 451 year: 2012 end-page: 457 ident: bib0120 article-title: Stigma and restriction on the social life of families of children with intellectual disabilities in Vietnam publication-title: Singapore Medical Journal – volume: 58 start-page: 20 year: 2001 end-page: 24 ident: bib0160 article-title: Unconscious emotions, conscious feelings, and curricular challenges publication-title: Educational Leadership – year: 2016 ident: bib0125 article-title: Self-stigma among carers of autistic people publication-title: Network Autism – volume: 15 start-page: 297 year: 2002 end-page: 313 ident: bib0135 article-title: Children of mothers with intellectual disability: Stigma, mother-child relationship and self-esteem publication-title: Journal of Applied Research in Intellectual Disabilities – volume: 16 start-page: 165 year: 1993 end-page: 169 ident: bib0010 article-title: Depression and anxiety in families with a mentally handicapped child publication-title: International Journal of Rehabilitation Research – start-page: 133 year: 2004 end-page: 160 ident: bib0020 article-title: Interviewing family members and care providers: Concepts, methodologies and cultures publication-title: In: The International handbook of applied research in intellectual disabilities – volume: 7 start-page: 48 year: 2000 end-page: 67 ident: bib0060 article-title: Mental health stigma as social attribution: Implications for research methods and attitude change publication-title: Clinical Psychology Science and Practice – volume: 59 start-page: 272 year: 2015 end-page: 283 ident: bib0185 article-title: Does type of disability make a difference in affiliate stigma among family caregivers of individuals with autism, intellectual disability or physical disability? publication-title: Journal of Intellectual Disability Research – volume: 7 start-page: 1385 year: 2016 end-page: 1395 ident: bib0190 article-title: Self-compassion: A potential buffer against affiliate stigma experienced by parents of children with autism spectrum disorders publication-title: Mindfulness – volume: 46 start-page: 352 year: 1991 end-page: 367 ident: bib0095 article-title: Cognition and motivation in emotion publication-title: The American Psychologist – volume: 34 start-page: 4103 year: 2013 end-page: 4114 ident: bib0180 article-title: Subjective well-being among family caregivers of individuals with developmental disabilities: The role of affiliate stigma and psychosocial moderating variables publication-title: Research in Developmental Disabilities – volume: 21 start-page: 532 year: 2008 end-page: 545 ident: bib0100 article-title: Affiliate stigma among caregivers of people with intellectual disability or mental illness publication-title: Journal of Applied Research in Intellectual Disabilities – volume: 48 start-page: 174 year: 1983 end-page: 187 ident: bib0165 article-title: Multiple identities and psychological well-being: A reformulation and test of the social isolation hypothesis publication-title: American Sociological Review – volume: 3 start-page: 105 year: 2000 end-page: 118 ident: bib0015 article-title: Parental stress attributed to family members with and without disability: A longitudinal study publication-title: Journal of Intellectual & Developmental Disability – volume: 12 start-page: 1284 year: 2002 end-page: 1299 ident: bib0075 article-title: Appraising the evidence: Reviewing disparate data systematically publication-title: Qualitative Health Research – volume: 15 start-page: 131 year: 1989 end-page: 139 ident: bib0175 article-title: Family views of stigma publication-title: Schizophrenia Bulletin – volume: 35 start-page: 1 year: 2013 end-page: 9 ident: bib0025 article-title: Stigma: Advances in theory and research publication-title: Basic and Applied Social Psychology – volume: 48 start-page: 174 issue: 2 year: 1983 ident: 10.1016/j.ridd.2019.03.001_bib0165 article-title: Multiple identities and psychological well-being: A reformulation and test of the social isolation hypothesis publication-title: American Sociological Review doi: 10.2307/2095103 – volume: 58 start-page: 1156 year: 2014 ident: 10.1016/j.ridd.2019.03.001_bib0090 article-title: Marital satisfaction of Chinese mothers of children with autism and intellectual disabilities in Hong Kong publication-title: Journal of Intellectual Disability Research doi: 10.1111/jir.12116 – volume: 53 start-page: 654 year: 2009 ident: 10.1016/j.ridd.2019.03.001_bib0050 article-title: Effect of perceived stigmatisation on the quality of life among ageing female family carers: A comparison of carers of adults with intellectual disability and carers of adults with mental illness publication-title: Journal of Intellectual Disability Research doi: 10.1111/j.1365-2788.2009.01173.x – volume: 36 start-page: 437 year: 2015 ident: 10.1016/j.ridd.2019.03.001_bib0040 article-title: The mediating effect of affective stigma between face concern and general mental health – The case of Chinese caregivers of children with intellectual disability publication-title: Research in Developmental Disabilities doi: 10.1016/j.ridd.2014.10.024 – volume: 59 start-page: 272 year: 2015 ident: 10.1016/j.ridd.2019.03.001_bib0185 article-title: Does type of disability make a difference in affiliate stigma among family caregivers of individuals with autism, intellectual disability or physical disability? publication-title: Journal of Intellectual Disability Research doi: 10.1111/jir.12136 – volume: 12 start-page: 1284 year: 2002 ident: 10.1016/j.ridd.2019.03.001_bib0075 article-title: Appraising the evidence: Reviewing disparate data systematically publication-title: Qualitative Health Research doi: 10.1177/1049732302238251 – volume: 15 start-page: 131 year: 1989 ident: 10.1016/j.ridd.2019.03.001_bib0175 article-title: Family views of stigma publication-title: Schizophrenia Bulletin doi: 10.1093/schbul/15.1.131 – volume: 46 start-page: 942 year: 2015 ident: 10.1016/j.ridd.2019.03.001_bib0080 article-title: Understanding the experience of stigma for parents of children with autism spectrum disorder and the role stigma plays in families’ lives publication-title: Journal of Autism and Developmental Disorders doi: 10.1007/s10803-015-2637-9 – volume: 46 start-page: 352 year: 1991 ident: 10.1016/j.ridd.2019.03.001_bib0095 article-title: Cognition and motivation in emotion publication-title: The American Psychologist doi: 10.1037/0003-066X.46.4.352 – volume: 27 start-page: 181 year: 2006 ident: 10.1016/j.ridd.2019.03.001_bib0145 article-title: Overprotection and lowered expectations of persons with disabilities: The unforeseen consequences publication-title: Work – volume: 31 start-page: 362 year: 2010 ident: 10.1016/j.ridd.2019.03.001_bib0105 article-title: Challenging behavior and co-morbid psychopathology in adults with intellectual disability and autism spectrum disorders publication-title: Research in Developmental Disabilities doi: 10.1016/j.ridd.2009.10.009 – year: 2016 ident: 10.1016/j.ridd.2019.03.001_bib0150 – volume: 7 start-page: 48 year: 2000 ident: 10.1016/j.ridd.2019.03.001_bib0060 article-title: Mental health stigma as social attribution: Implications for research methods and attitude change publication-title: Clinical Psychology Science and Practice doi: 10.1093/clipsy.7.1.48 – volume: 16 start-page: 165 year: 1993 ident: 10.1016/j.ridd.2019.03.001_bib0010 article-title: Depression and anxiety in families with a mentally handicapped child publication-title: International Journal of Rehabilitation Research doi: 10.1097/00004356-199306000-00011 – volume: 3 start-page: 105 year: 2000 ident: 10.1016/j.ridd.2019.03.001_bib0015 article-title: Parental stress attributed to family members with and without disability: A longitudinal study publication-title: Journal of Intellectual & Developmental Disability doi: 10.1080/13269780050033526 – year: 2011 ident: 10.1016/j.ridd.2019.03.001_bib0065 – volume: 7 start-page: 192 year: 1988 ident: 10.1016/j.ridd.2019.03.001_bib0110 article-title: Associative stigma: Perceptions of the difficulties of college-aged children of stigmatized fathers publication-title: Journal of Social and Clinical Psychology doi: 10.1521/jscp.1988.7.2-3.192 – start-page: 133 year: 2004 ident: 10.1016/j.ridd.2019.03.001_bib0020 article-title: Interviewing family members and care providers: Concepts, methodologies and cultures – volume: 35 start-page: 1 year: 2013 ident: 10.1016/j.ridd.2019.03.001_bib0025 article-title: Stigma: Advances in theory and research publication-title: Basic and Applied Social Psychology doi: 10.1080/01973533.2012.746147 – volume: 24 start-page: 115 year: 1998 ident: 10.1016/j.ridd.2019.03.001_bib0140 article-title: Psychiatric illness and family stigma publication-title: Schizophrenia Bulletin doi: 10.1093/oxfordjournals.schbul.a033304 – volume: 53 start-page: 451 year: 2012 ident: 10.1016/j.ridd.2019.03.001_bib0120 article-title: Stigma and restriction on the social life of families of children with intellectual disabilities in Vietnam publication-title: Singapore Medical Journal – volume: 15 start-page: 297 year: 2002 ident: 10.1016/j.ridd.2019.03.001_bib0135 article-title: Children of mothers with intellectual disability: Stigma, mother-child relationship and self-esteem publication-title: Journal of Applied Research in Intellectual Disabilities doi: 10.1046/j.1468-3148.2002.00140.x – volume: 33 start-page: 2122 year: 2012 ident: 10.1016/j.ridd.2019.03.001_bib0005 article-title: Self stigma in people with intellectual disabilities and courtesy stigma in family carers: A systematic review publication-title: Research in Developmental Disabilities doi: 10.1016/j.ridd.2012.06.013 – volume: 20 start-page: 35 year: 1998 ident: 10.1016/j.ridd.2019.03.001_bib0045 article-title: The impact of having a child with developmental disabilities on the family in Taiwan: Cultural context review publication-title: Social Development Issues – volume: 82 start-page: 97 year: 2001 ident: 10.1016/j.ridd.2019.03.001_bib0085 article-title: Consideration of cultural factors in working with Chinese American families with a mentally ill patient publication-title: Families in Society doi: 10.1606/1044-3894.221 – volume: 19 start-page: 367 year: 2015 ident: 10.1016/j.ridd.2019.03.001_bib0195 article-title: No matter how I think, it already hurts publication-title: Journal of Intellectual Disabilities doi: 10.1177/1744629515577909 – year: 1963 ident: 10.1016/j.ridd.2019.03.001_bib0070 – volume: 42 start-page: 37 year: 1987 ident: 10.1016/j.ridd.2019.03.001_bib0155 article-title: The role of culture and cultural techniques in psychotherapy: A critique and reformulation publication-title: The American Psychologist doi: 10.1037/0003-066X.42.1.37 – volume: 21 start-page: 532 year: 2008 ident: 10.1016/j.ridd.2019.03.001_bib0100 article-title: Affiliate stigma among caregivers of people with intellectual disability or mental illness publication-title: Journal of Applied Research in Intellectual Disabilities doi: 10.1111/j.1468-3148.2008.00426.x – year: 2016 ident: 10.1016/j.ridd.2019.03.001_bib0125 article-title: Self-stigma among carers of autistic people publication-title: Network Autism – volume: 57 start-page: 1117 year: 2013 ident: 10.1016/j.ridd.2019.03.001_bib0035 article-title: Caregiving of children with intellectual disabilities in china - an examination of affiliate stigma and the cultural thesis publication-title: Journal of Intellectual Disability Research doi: 10.1111/j.1365-2788.2012.01624.x – volume: 72 start-page: 505 year: 1999 ident: 10.1016/j.ridd.2019.03.001_bib0055 article-title: Religious and ethnic group influences on beliefs about mental illness: A qualitative interview study publication-title: The British Journal of Medical Psychology doi: 10.1348/000711299160202 – volume: 58 start-page: 20 issue: 3 year: 2001 ident: 10.1016/j.ridd.2019.03.001_bib0160 article-title: Unconscious emotions, conscious feelings, and curricular challenges publication-title: Educational Leadership – volume: 59 start-page: 948 year: 2015 ident: 10.1016/j.ridd.2019.03.001_bib0030 article-title: The influence of self-esteem and social support on the relationship between stigma and depressive symptomology in parents caring for children with intellectual disabilities publication-title: Journal of Intellectual Disability Research doi: 10.1111/jir.12205 – volume: 63 start-page: 974 year: 2012 ident: 10.1016/j.ridd.2019.03.001_bib0115 article-title: Empirical studies of self-stigma reduction strategies: A critical review of the literature publication-title: Psychiatric Services doi: 10.1176/appi.ps.201100459 – volume: 7 start-page: 1385 year: 2016 ident: 10.1016/j.ridd.2019.03.001_bib0190 article-title: Self-compassion: A potential buffer against affiliate stigma experienced by parents of children with autism spectrum disorders publication-title: Mindfulness doi: 10.1007/s12671-016-0580-2 – volume: 49 start-page: 270 year: 2013 ident: 10.1016/j.ridd.2019.03.001_bib0130 article-title: ‘Individualism-Collectivism’ as an explanatory device for mental illness stigma publication-title: Community Mental Health Journal doi: 10.1007/s10597-012-9534-x – volume: 16 start-page: 1383 year: 2016 ident: 10.1016/j.ridd.2019.03.001_bib0170 article-title: Stigma, explanatory models and unmet needs of caregivers of children with developmental disorders in a low-income African country: A cross-sectional facility-based survey publication-title: BMC Health Services Research doi: 10.1186/s12913-016-1383-9 – volume: 34 start-page: 4103 year: 2013 ident: 10.1016/j.ridd.2019.03.001_bib0180 article-title: Subjective well-being among family caregivers of individuals with developmental disabilities: The role of affiliate stigma and psychosocial moderating variables publication-title: Research in Developmental Disabilities doi: 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| Title | Stigma experienced by families of individuals with intellectual disabilities and autism: A systematic review |
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