Does ethnicity matter—Cultural factors underlying older adults’ end-of-life care preferences: A systematic review
Due to low levels of planned care, older adults of underrepresented communities tend to experience higher rates of unwanted treatments at end of life (EOL). The purpose of this review was to identify factors that may explain differences in EOL care preferences and planning between older adults from...
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Published in | Geriatric nursing (New York) Vol. 41; no. 2; pp. 89 - 97 |
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Main Authors | , |
Format | Journal Article |
Language | English |
Published |
United States
Elsevier Inc
01.03.2020
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Subjects | |
Online Access | Get full text |
ISSN | 0197-4572 1528-3984 1528-3984 |
DOI | 10.1016/j.gerinurse.2019.07.001 |
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Abstract | Due to low levels of planned care, older adults of underrepresented communities tend to experience higher rates of unwanted treatments at end of life (EOL). The purpose of this review was to identify factors that may explain differences in EOL care preferences and planning between older adults from the general population and ethnically diverse populations. We hypothesized that culture-specific factors may be fundamental. To describe similarities and differences, we conducted a comprehensive literature search using keywords and subject headings. Findings from 14 studies were critically examined, grouped, and compared across studies and populations. While studies on general populations showed the significance of health and sociodemographic factors, studies on underrepresented groups frequently cited the importance of spirituality, belief systems, acculturation, healthcare system distrust, and social networks. |
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AbstractList | Due to low levels of planned care, older adults of underrepresented communities tend to experience higher rates of unwanted treatments at end of life (EOL). The purpose of this review was to identify factors that may explain differences in EOL care preferences and planning between older adults from the general population and ethnically diverse populations. We hypothesized that culture-specific factors may be fundamental. To describe similarities and differences, we conducted a comprehensive literature search using keywords and subject headings. Findings from 14 studies were critically examined, grouped, and compared across studies and populations. While studies on general populations showed the significance of health and sociodemographic factors, studies on underrepresented groups frequently cited the importance of spirituality, belief systems, acculturation, healthcare system distrust, and social networks. Due to low levels of planned care, older adults of underrepresented communities tend to experience higher rates of unwanted treatments at end of life (EOL). The purpose of this review was to identify factors that may explain differences in EOL care preferences and planning between older adults from the general population and ethnically diverse populations. We hypothesized that culture-specific factors may be fundamental. To describe similarities and differences, we conducted a comprehensive literature search using keywords and subject headings. Findings from 14 studies were critically examined, grouped, and compared across studies and populations. While studies on general populations showed the significance of health and sociodemographic factors, studies on underrepresented groups frequently cited the importance of spirituality, belief systems, acculturation, healthcare system distrust, and social networks.Due to low levels of planned care, older adults of underrepresented communities tend to experience higher rates of unwanted treatments at end of life (EOL). The purpose of this review was to identify factors that may explain differences in EOL care preferences and planning between older adults from the general population and ethnically diverse populations. We hypothesized that culture-specific factors may be fundamental. To describe similarities and differences, we conducted a comprehensive literature search using keywords and subject headings. Findings from 14 studies were critically examined, grouped, and compared across studies and populations. While studies on general populations showed the significance of health and sociodemographic factors, studies on underrepresented groups frequently cited the importance of spirituality, belief systems, acculturation, healthcare system distrust, and social networks. |
Author | Williams, Christine Lisa Rahemi, Zahra |
Author_xml | – sequence: 1 givenname: Zahra surname: Rahemi fullname: Rahemi, Zahra email: zrahemi@clemson.edu organization: School of Nursing, Clemson University, Clemson, SC 29634, United States – sequence: 2 givenname: Christine Lisa surname: Williams fullname: Williams, Christine Lisa organization: Christine E. Lynn College of Nursing, Florida Atlantic University, Boca Raton, FL 33431, United States |
BackLink | https://www.ncbi.nlm.nih.gov/pubmed/31320127$$D View this record in MEDLINE/PubMed |
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Cites_doi | 10.1177/1049909111407627 10.1089/jpm.2013.9468 10.2190/OM.63.1.a 10.1111/jgs.12894 10.1111/j.1532-5415.2005.00526.x 10.1080/10646175.2012.667724 10.1097/ANS.0000000000000148 10.1111/j.1532-5415.2010.02853.x 10.1017/S0144686X10000966 10.1177/1757975913510727 10.3928/00989134-20140310-01 10.1097/01.NUMA.0000547834.95083.e9 10.1177/1049909113486170 10.1111/jgs.14261 10.1097/ANS.0000000000000192 10.1016/j.gerinurse.2012.01.009 10.1111/j.1573-7861.2009.01135.x 10.1111/jgs.14285 10.20467/1091-5710-19.3.36 10.1177/0193945919832304 10.1111/j.1547-5069.2007.00162.x 10.1016/j.jpainsymman.2014.09.015 10.1111/j.1532-5415.2008.01919.x 10.1007/s10823-019-09371-x |
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Keywords | End of life care Advance care planning Preferences Older adults Ethnicity and culture |
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completion of advance directives publication-title: J Nurs Scholarsh doi: 10.1111/j.1547-5069.2007.00162.x – year: 2014 ident: 10.1016/j.gerinurse.2019.07.001_bib0005 – ident: 10.1016/j.gerinurse.2019.07.001_bib0002 – volume: 49 start-page: 828 issue: 5 year: 2015 ident: 10.1016/j.gerinurse.2019.07.001_bib0017 article-title: Quality of life and cost of care at the end of life : the role of advance directives publication-title: J Pain Symptom Manage doi: 10.1016/j.jpainsymman.2014.09.015 – volume: 56 start-page: 1953 issue: 10 year: 2008 ident: 10.1016/j.gerinurse.2019.07.001_bib0022 article-title: What explains racial differences in the use of advance directives and attitudes toward hospice care publication-title: J Am Geriatr Soc doi: 10.1111/j.1532-5415.2008.01919.x – year: 2019 ident: 10.1016/j.gerinurse.2019.07.001_bib0008 article-title: Planning ahead for end-of-life healthcare among Iranian-American older adults : attitudes and communication of healthcare wishes 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SubjectTerms | Advance care planning Aged Decision Making End of life care Ethnic Groups - psychology Ethnicity and culture Humans Older adults Patient Preference - ethnology Preferences Terminal Care |
Title | Does ethnicity matter—Cultural factors underlying older adults’ end-of-life care preferences: A systematic review |
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