Gender and quality of life in myasthenia gravis patients from the myasthenia gravis foundation of America registry
ABSTRACT Introduction: Quality of life (QOL) has been poorly characterized among patients with myasthenia gravis (MG) other than assessments performed within the clinical setting. Methods: Patients age ≥ 18 years who were diagnosed with MG and registered with the MG patient registry between July 1,...
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| Published in | Muscle & nerve Vol. 58; no. 1; pp. 90 - 98 |
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| Main Authors | , , , |
| Format | Journal Article |
| Language | English |
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United States
Wiley Subscription Services, Inc
01.07.2018
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| Online Access | Get full text |
| ISSN | 0148-639X 1097-4598 1097-4598 |
| DOI | 10.1002/mus.26104 |
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| Abstract | ABSTRACT
Introduction: Quality of life (QOL) has been poorly characterized among patients with myasthenia gravis (MG) other than assessments performed within the clinical setting. Methods: Patients age ≥ 18 years who were diagnosed with MG and registered with the MG patient registry between July 1, 2013, and June 30, 2016, were included. Demographic information, disease related history, and QOL were compared between men and women using multivariable analysis. Results: A total of 1,315 subjects (827 women) were included. Women were significantly younger, had a younger age at symptom onset, and were more likely to have thymoma and thymectomy. The 15‐item Myasthenia Gravis Quality of Life scale (MG‐QOL15) was significantly worse in women. MG‐QOL15 score was comparable between women who had thymectomy and men with or without thymectomy. Discussion: QOL among MG patients is worse in women compared with men, but this disparity is eliminated in women who have undergone thymectomy. Muscle Nerve 58: 90–98, 2018 |
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| AbstractList | Quality of life (QOL) has been poorly characterized among patients with myasthenia gravis (MG) other than assessments performed within the clinical setting.
Patients age ≥ 18 years who were diagnosed with MG and registered with the MG patient registry between July 1, 2013, and June 30, 2016, were included. Demographic information, disease related history, and QOL were compared between men and women using multivariable analysis.
A total of 1,315 subjects (827 women) were included. Women were significantly younger, had a younger age at symptom onset, and were more likely to have thymoma and thymectomy. The 15-item Myasthenia Gravis Quality of Life scale (MG-QOL15) was significantly worse in women. MG-QOL15 score was comparable between women who had thymectomy and men with or without thymectomy.
QOL among MG patients is worse in women compared with men, but this disparity is eliminated in women who have undergone thymectomy. Muscle Nerve, 2018. Quality of life (QOL) has been poorly characterized among patients with myasthenia gravis (MG) other than assessments performed within the clinical setting.INTRODUCTIONQuality of life (QOL) has been poorly characterized among patients with myasthenia gravis (MG) other than assessments performed within the clinical setting.Patients age ≥ 18 years who were diagnosed with MG and registered with the MG patient registry between July 1, 2013, and June 30, 2016, were included. Demographic information, disease related history, and QOL were compared between men and women using multivariable analysis.METHODSPatients age ≥ 18 years who were diagnosed with MG and registered with the MG patient registry between July 1, 2013, and June 30, 2016, were included. Demographic information, disease related history, and QOL were compared between men and women using multivariable analysis.A total of 1,315 subjects (827 women) were included. Women were significantly younger, had a younger age at symptom onset, and were more likely to have thymoma and thymectomy. The 15-item Myasthenia Gravis Quality of Life scale (MG-QOL15) was significantly worse in women. MG-QOL15 score was comparable between women who had thymectomy and men with or without thymectomy.RESULTSA total of 1,315 subjects (827 women) were included. Women were significantly younger, had a younger age at symptom onset, and were more likely to have thymoma and thymectomy. The 15-item Myasthenia Gravis Quality of Life scale (MG-QOL15) was significantly worse in women. MG-QOL15 score was comparable between women who had thymectomy and men with or without thymectomy.QOL among MG patients is worse in women compared with men, but this disparity is eliminated in women who have undergone thymectomy. Muscle Nerve, 2018.DISCUSSIONQOL among MG patients is worse in women compared with men, but this disparity is eliminated in women who have undergone thymectomy. Muscle Nerve, 2018. ABSTRACT Introduction: Quality of life (QOL) has been poorly characterized among patients with myasthenia gravis (MG) other than assessments performed within the clinical setting. Methods: Patients age ≥ 18 years who were diagnosed with MG and registered with the MG patient registry between July 1, 2013, and June 30, 2016, were included. Demographic information, disease related history, and QOL were compared between men and women using multivariable analysis. Results: A total of 1,315 subjects (827 women) were included. Women were significantly younger, had a younger age at symptom onset, and were more likely to have thymoma and thymectomy. The 15‐item Myasthenia Gravis Quality of Life scale (MG‐QOL15) was significantly worse in women. MG‐QOL15 score was comparable between women who had thymectomy and men with or without thymectomy. Discussion: QOL among MG patients is worse in women compared with men, but this disparity is eliminated in women who have undergone thymectomy. Muscle Nerve 58: 90–98, 2018 Introduction : Quality of life (QOL) has been poorly characterized among patients with myasthenia gravis (MG) other than assessments performed within the clinical setting. Methods : Patients age ≥ 18 years who were diagnosed with MG and registered with the MG patient registry between July 1, 2013, and June 30, 2016, were included. Demographic information, disease related history, and QOL were compared between men and women using multivariable analysis. Results : A total of 1,315 subjects (827 women) were included. Women were significantly younger, had a younger age at symptom onset, and were more likely to have thymoma and thymectomy. The 15‐item Myasthenia Gravis Quality of Life scale (MG‐QOL15) was significantly worse in women. MG‐QOL15 score was comparable between women who had thymectomy and men with or without thymectomy. Discussion : QOL among MG patients is worse in women compared with men, but this disparity is eliminated in women who have undergone thymectomy. Muscle Nerve 58 : 90–98, 2018 Introduction: Quality of life (QOL) has been poorly characterized among patients with myasthenia gravis (MG) other than assessments performed within the clinical setting. Methods: Patients age ≥ 18 years who were diagnosed with MG and registered with the MG patient registry between July 1, 2013, and June 30, 2016, were included. Demographic information, disease related history, and QOL were compared between men and women using multivariable analysis. Results: A total of 1,315 subjects (827 women) were included. Women were significantly younger, had a younger age at symptom onset, and were more likely to have thymoma and thymectomy. The 15‐item Myasthenia Gravis Quality of Life scale (MG‐QOL15) was significantly worse in women. MG‐QOL15 score was comparable between women who had thymectomy and men with or without thymectomy. Discussion: QOL among MG patients is worse in women compared with men, but this disparity is eliminated in women who have undergone thymectomy. Muscle Nerve 58: 90–98, 2018 |
| Author | Cutter, Gary Kaminski, Henry J. Lee, Ikjae Xin, Haichang |
| Author_xml | – sequence: 1 givenname: Ikjae surname: Lee fullname: Lee, Ikjae email: Ikjaelee@uabmc.edu organization: University of Alabama at Birmingham – sequence: 2 givenname: Henry J. surname: Kaminski fullname: Kaminski, Henry J. organization: The George Washington University – sequence: 3 givenname: Haichang surname: Xin fullname: Xin, Haichang organization: University of Alabama at Birmingham – sequence: 4 givenname: Gary surname: Cutter fullname: Cutter, Gary organization: University of Alabama at Birmingham |
| BackLink | https://www.ncbi.nlm.nih.gov/pubmed/29466829$$D View this record in MEDLINE/PubMed |
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| Notes | Conflicts of Interest Funding We appreciate the support from Myasthenia Gravis Foundation of America in establishing and maintaining the Myasthenia Gravis Patient Registry. Author Gary Cutter serves as a member of Data and Safety Monitoring Boards: AMO Pharmaceuticals, Apotek, Gilead Pharmaceuticals, Horizon Pharmaceuticals, Modigenetech/Prolor, Merck, Merck/Pfizer, Opko Biologics, Neuren, Sanofi‐Aventis, Reata Pharmaceuticals, Receptos/Celgene, Teva pharmaceuticals, NHLBI (Protocol Review Committee), NICHD (OPRU oversight committee). Consulting or Advisory Boards: Atara Biotherapeutics, Bioeq GmBH, Cerespir Inc, Consortium of MS Centers (grant), Genzyme, Genentech, Innate Therapeutics, Jannsen Pharmaceuticals, Klein‐Buendel Incorporated, Medimmune, Medday, Nivalis, Novartis, Opexa Therapeutics, Roche, Savara Inc., Somahlution, Teva pharmaceuticals, Transparency Life Sciences, TG Therapeutics. Author Henry Kaminski serves as Data and Safety Monitoring Boards for Novartis and the National Institutes of Health, receives consulting fees from Alnylam Pharmaceuticals, UCB, Biocatalyst, RA Pharmaceuticals, and Momenta Pharmaceuticals. He receives grant support from the Myasthenia Gravis Foundation of Illinois, Akari Pharmaceuticals, and the Muscular Dystrophy Association, and holds a patent related to technology to focus a complement inhibitor on the neuromuscular junction for the treatment of myasthenia gravis (U.S. patent no. 8,961,981). ObjectType-Article-1 SourceType-Scholarly Journals-1 ObjectType-Feature-2 content type line 14 content type line 23 |
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Introduction: Quality of life (QOL) has been poorly characterized among patients with myasthenia gravis (MG) other than assessments performed within... Introduction : Quality of life (QOL) has been poorly characterized among patients with myasthenia gravis (MG) other than assessments performed within the... Quality of life (QOL) has been poorly characterized among patients with myasthenia gravis (MG) other than assessments performed within the clinical setting.... Introduction: Quality of life (QOL) has been poorly characterized among patients with myasthenia gravis (MG) other than assessments performed within the... Quality of life (QOL) has been poorly characterized among patients with myasthenia gravis (MG) other than assessments performed within the clinical... |
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| SubjectTerms | Demographics gender Men MGFA registry MG‐QOL15 Muscles Myasthenia Myasthenia gravis Neuromuscular junctions Patients Quality of life Thymectomy Thymoma Women |
| Title | Gender and quality of life in myasthenia gravis patients from the myasthenia gravis foundation of America registry |
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