疾病自傳、影像與性別身體政治：歐美女性主義乳癌病友的敘事分析
由於罹患乳癌帶來汙名，女性病友大多選擇隱藏疾病與身體的損傷。為了對抗疾病汙名，歐美女性主義藝術家自1980年代後開始以攝影方式「證言」罹病經驗，企圖挑戰社會異性戀常規的理想女性氣質建構。本文以20世紀末三位女性主義者（Deena Metzger、Maxi Matuschka、Jo Spence）攝影的疾病自傳（photographic autopathography）為例，分析疾病傳記工作的敘事型態，並探討乳癌性別身體的再現、自我敘事與其「個人即政治」意涵。本文指出，三位病友藝術家反思疾病經驗並挑戰性別汙名的「衣櫃結構」，以攝影的疾病自傳與展演行動將身體損傷經驗，轉化為女性主義與病友政治實踐的...
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| Published in | 女學學誌:婦女與性別研究 no. 53; pp. 1 - 59 |
|---|---|
| Main Author | |
| Format | Journal Article |
| Language | Chinese |
| Published |
台灣
國立臺灣大學人口與性別研究中心婦女與性別研究組
01.12.2023
臺灣大學人口與性別研究中心婦女與性別研究組 |
| Subjects | |
| Online Access | Get full text |
| ISSN | 1683-4852 |
| DOI | 10.6255/JWGS.202312_(53).01 |
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| Abstract | 由於罹患乳癌帶來汙名，女性病友大多選擇隱藏疾病與身體的損傷。為了對抗疾病汙名，歐美女性主義藝術家自1980年代後開始以攝影方式「證言」罹病經驗，企圖挑戰社會異性戀常規的理想女性氣質建構。本文以20世紀末三位女性主義者（Deena Metzger、Maxi Matuschka、Jo Spence）攝影的疾病自傳（photographic autopathography）為例，分析疾病傳記工作的敘事型態，並探討乳癌性別身體的再現、自我敘事與其「個人即政治」意涵。本文指出，三位病友藝術家反思疾病經驗並挑戰性別汙名的「衣櫃結構」，以攝影的疾病自傳與展演行動將身體損傷經驗，轉化為女性主義與病友政治實踐的動力。乳癌的疾病自傳分析可見以下三種女性主義病友敘事：（1）自然與生態主義式的生命力敘事：Metzger的另類療癒身體；（2）尊嚴與生存者敘事：衝破衣櫃的Matuschka與另類美感損傷的身體；（3）怪異身體的批判敘事：對抗醫學霸權與性別凝視的Spence。本研究指出，這三位女性主義乳癌病友的疾病敘事，對於醫療社會學與性別研究領域仍具有無可取代的啟示。 |
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| AbstractList | 由於罹患乳癌帶來汙名，女性病友大多選擇隱藏疾病與身體的損傷。為了對抗疾病汙名，歐美女性主義藝術家自1980年代後開始以攝影方式「證言」罹病經驗，企圖挑戰社會異性戀常規的理想女性氣質建構。本文以20世紀末三位女性主義者（Deena Metzger、Maxi Matuschka、Jo Spence）攝影的疾病自傳（photographic autopathography）為例，分析疾病傳記工作的敘事型態，並探討乳癌性別身體的再現、自我敘事與其「個人即政治」意涵。本文指出，三位病友藝術家反思疾病經驗並挑戰性別汙名的「衣櫃結構」，以攝影的疾病自傳與展演行動將身體損傷經驗，轉化為女性主義與病友政治實踐的動力。乳癌的疾病自傳分析可見以下三種女性主義病友敘事：（1）自然與生態主義式的生命力敘事：Metzger的另類療癒身體；（2）尊嚴與生存者敘事：衝破衣櫃的Matuschka與另類美感損傷的身體；（3）怪異身體的批判敘事：對抗醫學霸權與性別凝視的Spence。本研究指出，這三位女性主義乳癌病友的疾病敘事，對於醫療社會學與性別研究領域仍具有無可取代的啟示。 Due to the stigma surrounding breast cancer, many female patients choose to conceal their illnesses and their damaged bodies. In an effort to resist this stigmatization, Euro-American feminist patients began to publicize photographic autobiographies after the 1980s, aiming to foster collective witness to breast cancer. They challenged the social construction of the ideal feminine body within heterosexual normative society. This research focuses on analyzing the visual representation of post-surgical bodies and narrative types in the biographical work of the three feminist artists from the late 20th century: Deena Metzger, Maxi Matuschka, and Jo Spence. Through an exploration of these artists’ photographic autopathography concerning their illness, this article investigates the representation of the gendered body, the narratives of illness, and the meanings of the feminist statement “The personal is political.” This research highlights the view that the three feminist patients reflected upon their experiences o |
| Author | 鄭斐文(Fei-Wen Cheng) |
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| DocumentTitleAlternate | Autopathography, Images and Gender Body Politics: A Narrative Analysis of Euro-American Feminist Breast Cancer Patients |
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| Keywords | 乳癌病友攝影 gender body politics body impairment 性別身體政治 breast cancer patient photography 損傷身體 feminism biographical work autopathography 傳記工作 女性主義 疾病自傳 |
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| PublicationTitle | 女學學誌:婦女與性別研究 |
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| PublicationYear | 2023 |
| Publisher | 國立臺灣大學人口與性別研究中心婦女與性別研究組 臺灣大學人口與性別研究中心婦女與性別研究組 |
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| Snippet | 由於罹患乳癌帶來汙名，女性病友大多選擇隱藏疾病與身體的損傷。為了對抗疾病汙名，歐美女性主義藝術家自1980年代後開始以攝影方式「證言」罹病經驗，企圖挑戰社會異性戀常規... Due to the stigma surrounding breast cancer, many female patients choose to conceal their illnesses and their damaged bodies. In an effort to resist this... |
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| SubjectTerms | autopathography biographical work body impairment breast cancer patient photography feminism gender body politics THCI TSSCI 乳癌病友攝影 傳記工作 女性主義 性別身體政治 損傷身體 疾病自傳 |
| Title | 疾病自傳、影像與性別身體政治：歐美女性主義乳癌病友的敘事分析 |
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