Tackling Dilemmas in Supporting "The Whole Person" in Online Patient Communities
Online health communities that engage the patient as a attend to personal and medical needs in a holistic manner. Whether current communities structure interaction between health professionals and patients to address the whole person is an open question. To gain insights into this question, we exami...
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| Published in | Proceedings of the SIGCHI Conference on Human Factors in Computing Systems Vol. 2012; p. 923 |
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| Main Authors | , , |
| Format | Journal Article Conference Proceeding |
| Language | English |
| Published |
United States
2012
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| Subjects | |
| Online Access | Get full text |
| DOI | 10.1145/2207676.2208535 |
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| Abstract | Online health communities that engage the patient as a
attend to personal and medical needs in a holistic manner. Whether current communities structure interaction between health professionals and patients to address the whole person is an open question. To gain insights into this question, we examined a sample of online patient communities to understand health professionals' involvement in bringing in medical advice into peer-patient conversations. We found the communities fall short in supporting the whole person, because (1) patient expertise and clinical expertise generated by health professionals are shared separately, and (2) patients' quantified data are separate from narrative experiences. Such separation in the design of these systems can lead to limitations in addressing patients' interwoven medical and personal concerns. We discuss dilemmas and design implications for supporting the whole person in online patient communities. |
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| AbstractList | Online health communities that engage the patient as a
attend to personal and medical needs in a holistic manner. Whether current communities structure interaction between health professionals and patients to address the whole person is an open question. To gain insights into this question, we examined a sample of online patient communities to understand health professionals' involvement in bringing in medical advice into peer-patient conversations. We found the communities fall short in supporting the whole person, because (1) patient expertise and clinical expertise generated by health professionals are shared separately, and (2) patients' quantified data are separate from narrative experiences. Such separation in the design of these systems can lead to limitations in addressing patients' interwoven medical and personal concerns. We discuss dilemmas and design implications for supporting the whole person in online patient communities. |
| Author | Pratt, Wanda Huh, Jina Patel, Rupa |
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| Keywords | online patient communities Health collaborative help Medical information systems H.5.2 User Interfaces J.3 Life and Medical Sciences the whole person |
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| References | 20406528 - Psychol Med. 2010 Dec;40(12):1943-57 626456 - Ann Intern Med. 1978 Feb;88(2):251-8 3956899 - Fam Pract. 1986 Mar;3(1):24-30 18504244 - J Med Internet Res. 2008 May 27;10(3):e15 20299481 - Diabetes Care. 2010 Jun;33(6):1275-81 7555554 - Diabetes Care. 1995 Jul;18(7):943-9 19251770 - Health Educ Res. 2009 Aug;24(4):646-54 9929185 - Proc AMIA Symp. 1998;:76-80 21846635 - J Med Internet Res. 2011 Aug 16;13(3):e62 |
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attend to personal and medical needs in a holistic manner. Whether current communities structure... |
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| Title | Tackling Dilemmas in Supporting "The Whole Person" in Online Patient Communities |
| URI | https://www.ncbi.nlm.nih.gov/pubmed/24634893 https://www.ncbi.nlm.nih.gov/pmc/articles/3949736 |
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