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How do young people with a hereditary cancer predisposition syndrome understand and experience cancer survivorship? “With Li‐Fraumeni syndrome, it’s just an intermission”
Werner‐Lin, Allison, Forbes Shepherd, Rowan, Rising, Camella J., Thompson, Ashley S., Huelsnitz, Chloe, Wilsnack, Catherine, Boyd, Patrick, Sleight, Alix G., Hutson, Sadie, Khincha, Payal P.
Published in Psycho-oncology (Chichester, England) (01.03.2023)
Published in Psycho-oncology (Chichester, England) (01.03.2023)
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Journal Article
“They Can't Find Anything Wrong with Him, Yet”: Mothers’ experiences of parenting an infant with a prenatally diagnosed copy number variant (CNV)
Werner‐Lin, Allison, Walser, Sarah, Barg, Frances K., Bernhardt, Barbara A.
Published in American journal of medical genetics. Part A (01.02.2017)
Published in American journal of medical genetics. Part A (01.02.2017)
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Journal Article
Gratitude, protective buffering, and cognitive dissonance: How families respond to pediatric whole exome sequencing in the absence of actionable results
Werner‐Lin, Allison, Zaspel, Lori, Carlson, Mae, Mueller, Rebecca, Walser, Sarah A., Desai, Ria, Bernhardt, Barbara A.
Published in American journal of medical genetics. Part A (01.03.2018)
Published in American journal of medical genetics. Part A (01.03.2018)
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Journal Article
Family Health Leaders: Lessons on Living with Li‐Fraumeni Syndrome across Generations
Pantaleao, Ashley, Young, Jennifer L., Epstein, Norman B., Carlson, Mae, Bremer, Renée C., Khincha, Payal P., Peters, June A., Greene, Mark H., Roy, Kevin, Achatz, Maria Isabel, Savage, Sharon A., Werner‐Lin, Allison
Published in Family process (01.12.2020)
Published in Family process (01.12.2020)
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Journal Article
Health professionals’ practice for young people with, or at risk of, Li–Fraumeni syndrome: An Australasian survey
Forbes Shepherd, Rowan, Keogh, Louise A., Werner‐Lin, Allison, Delatycki, Martin B., Forrest, Laura E.
Published in Journal of genetic counseling (01.10.2020)
Published in Journal of genetic counseling (01.10.2020)
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Journal Article
Teaching Future Teachers: A Model Workshop for Doctoral Education
Pryce, Julia M., Ainbinder, Alisa, Werner-Lin, Allison V., Browne, Teri A., Smithgall, Cheryl
Published in Journal of teaching in social work (01.09.2011)
Published in Journal of teaching in social work (01.09.2011)
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Journal Article
Waiting and “weighted down”: the challenge of anticipatory loss for individuals and families with Li-Fraumeni Syndrome
Werner-Lin, Allison, Young, Jennifer L., Wilsnack, Catherine, Merrill, Shana L., Groner, Victoria, Greene, Mark H., Khincha, Payal P.
Published in Familial cancer (01.07.2020)
Published in Familial cancer (01.07.2020)
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Journal Article
“Something Extra on Chromosome 5”: Parents’ Understanding of Positive Prenatal Chromosomal Microarray Analysis (CMA) Results
Walser, Sarah A., Werner-Lin, Allison, Russell, Amita, Wapner, Ronald J., Bernhardt, Barbara A.
Published in Journal of genetic counseling (01.10.2016)
Published in Journal of genetic counseling (01.10.2016)
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Journal Article
Incorporating information regarding preimplantation genetic diagnosis into discussions concerning testing and risk management for BRCA1/2 mutations
Hurley, Karen, Rubin, Lisa R., Werner‐Lin, Allison, Sagi, Michal, Kemel, Yelena, Stern, Rikki, Phillips, Aliza, Cholst, Ina, Kauff, Noah, Offit, Kenneth
Published in Cancer (15.12.2012)
Published in Cancer (15.12.2012)
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Journal Article
Living with rare genetic disease during the COVID-19 pandemic: A qualitative study of adolescents and young adults with Li-Fraumeni syndrome
Werner-Lin, Allison, Khincha, Payal P., Thompson, Ashley S., Rising, Camella, Sleight, Alix, Wilsnack, Catherine, Boyd, Patrick, Feldman, Alexandra, Shepherd, Rowan Forbes, Savage, Sharon A.
Published in Rare (Amsterdam, Netherlands) (2024)
Published in Rare (Amsterdam, Netherlands) (2024)
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Journal Article
A “rotating menu” of medical uncertainty for families affected by telomere biology disorders: A qualitative interview study
Pearce, Emily E., Majid, Alina, Brown, Toniya, Wilsnack, Catherine, Rising, Camella, Thompson, Ashley S., Forbes Shepherd, Rowan, Niknafs, Arman, Werner-Lin, Allison, Gilkey, Melissa B., Ribisl, Kurt M., Hutson, Sadie P., Han, Paul K.J., Savage, Sharon A.
Published in SSM. Qualitative research in health (01.12.2024)
Published in SSM. Qualitative research in health (01.12.2024)
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Journal Article
“Crying in the Wilderness”—The Use of Web-Based Support in Telomere Biology Disorders: Thematic Analysis
Pearce, Emily Eidenier, Majid, Alina, Brown, Toniya, Shepherd, Rowan Forbes, Rising, Camella, Wilsnack, Catherine, Thompson, Ashley S, Gilkey, Melissa B, Ribisl, Kurt M, Lazard, Allison J, Han, Paul KJ, Werner-Lin, Allison, Hutson, Sadie P, Savage, Sharon A
Published in JMIR formative research (16.12.2024)
Published in JMIR formative research (16.12.2024)
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Journal Article